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评估一项针对患有肿瘤问题儿童的家长的基于网络的家庭中心赋权计划的有效性:随机对照试验。

Assessment of the effectiveness of a web-based family centered empowerment program for the parents of children with oncological problems: Randomized controlled trial.

作者信息

Akdeniz Uysal Derya, Yigit Rana

机构信息

Mersin University Hospital, 33343 Mersin, Turkey.

Retired Faculty Member, Department of Pediatric Nursing, Faculty of Nursing, Mersin University, 33110 Mersin, Türkiye.

出版信息

J Pediatr Nurs. 2025 Jul-Aug;83:69-81. doi: 10.1016/j.pedn.2025.04.018. Epub 2025 Apr 28.

Abstract

PURPOSE

The study aims to examine the effects of a web-based Family-Centered Empowerment Model based educational intervention given to parents of children with oncological problems on caregiving ability, self-efficacy, self-esteem, depression, anxiety, and stress.

DESIGN & METHODS: The present study used a parallel-group, randomized, controlled, single-blind experimental design. Participants (n = 76) were divided into two groups: intervention (I = 38) and control (C = 38). The intervention group participated in an eight-week web-based empowerment program. Data were collected before, after, and 1 month after the training using the Information Form, Scale for Assessing the Ability of Family Members Providing Care to Cancer Patients, General Self-Efficacy Scale, Rosenberg Self-Esteem Scale, Depression, Anxiety, and Stress Scale. Data were analyzed using descriptive statistics, Pearson chi-square, Fisher Exact test, independent samples t-test, two-way repeated measures ANOVA, and post hoc Bonferroni analyses.

RESULTS

It was determined that the care ability and self-efficacy mean scores of the parents in the intervention group increased compared to the control group, while the self-esteem and depression, anxiety, and stress mean scores decreased.

CONCLUSION

Web-based empowerment program is an effective method for improving parents' caregiving abilities, increasing their self-efficacy and self-esteem, and reducing depression, anxiety, and stress levels.

IMPLICATIONS FOR PRACTICE

In the management of this process, which is more difficult than other diseases, the web-based AMGM-based training program is an easy-to-implement and effective care approach that primarily aims to empower the caregiver. In addition, the developed website is a practical guide that parents can use at home to manage the problems they encounter.

摘要

目的

本研究旨在探讨基于网络的家庭赋权模式教育干预对患有肿瘤疾病儿童的父母的护理能力、自我效能感、自尊、抑郁、焦虑和压力的影响。

设计与方法

本研究采用平行组、随机、对照、单盲实验设计。参与者(n = 76)分为两组:干预组(I = 38)和对照组(C = 38)。干预组参加了为期八周的基于网络的赋权计划。在培训前、培训后和培训后1个月使用信息表、癌症患者家庭护理人员能力评估量表、一般自我效能量表、罗森伯格自尊量表、抑郁、焦虑和压力量表收集数据。使用描述性统计、Pearson卡方检验、Fisher精确检验、独立样本t检验、双向重复测量方差分析和事后Bonferroni分析对数据进行分析。

结果

与对照组相比,干预组父母的护理能力和自我效能感平均得分有所提高,而自尊、抑郁、焦虑和压力平均得分有所下降。

结论

基于网络的赋权计划是提高父母护理能力、增强其自我效能感和自尊、降低抑郁、焦虑和压力水平的有效方法。

对实践的启示

在这个比其他疾病更难管理的过程中,基于网络的AMGM培训计划是一种易于实施且有效的护理方法,主要目的是增强护理人员的能力。此外,开发的网站是父母可以在家中用来管理他们遇到的问题的实用指南。

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