Fabius Chanee D, Chen Jie, Coe Norma B, Drabo Emmanuel F, Fashaw-Walters Shekinah, Rivera-Hernandez Maricruz, Sadarangani Tina
Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Department of Health Policy and Management, School of Public Health, University of Maryland at College Park, College Park, Maryland, USA.
Alzheimers Dement. 2025 Apr;21(4):e70186. doi: 10.1002/alz.70186.
Addressing disparities related to Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) is a priority for policymakers, practitioners, and researchers. In this perspective, we highlight important gaps and opportunities presented during Session 4: Disparities in Health Care Access, Utilization, and Quality, of the 2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and Their Care Partners/Caregivers. We call attention to three areas: (1) increased data availability and linkages across local, state, and federal levels; (2) health information technology use and related care access, quality, and costs; and (3) diverse health insurance models used to enable access to medical care, long-term services and supports, and address care quality. Recommendations present considerations for future research and opportunities to strengthen policies related to the care of persons living with AD/ADRD. HIGHLIGHTS: Disparities related to AD/ADRD negatively impact diverse populations. Limited data on underrepresented groups make it difficult to assess the full scope of disparities. Increasing access to health information technology is necessary for reducing disparities. More information is needed to understand the impact of payment models on addressing disparities.
解决与阿尔茨海默病及阿尔茨海默病相关痴呆症(AD/ADRD)有关的差异问题,是政策制定者、从业者和研究人员的首要任务。从这个角度来看,我们强调了在2023年痴呆症患者及其护理伙伴/照料者护理、服务与支持全国研究峰会上,第4场会议“医疗保健获取、利用和质量方面的差异”中呈现的重要差距和机遇。我们关注三个领域:(1)提高地方、州和联邦各级的数据可用性及数据关联;(2)健康信息技术的使用以及相关的医疗保健获取、质量和成本;(3)用于实现医疗保健、长期服务与支持的获取以及解决护理质量问题的多种医疗保险模式。建议提出了对未来研究的考虑因素,以及加强与AD/ADRD患者护理相关政策的机遇。要点:与AD/ADRD相关的差异对不同人群产生负面影响。关于代表性不足群体的数据有限,难以全面评估差异范围。增加健康信息技术的获取对于减少差异至关重要。需要更多信息来了解支付模式对解决差异的影响。