Sopamena Yoslien, Sutiawan Raden, Visser Marlies J, Dadun Dadun, Damayanti Rita, Anshari Dien, Yang Lawrence, Peters Ruth M H, Zweekhorst Marjolein B M
Athena Institute, Faculty of Science, VU Amsterdam, Amsterdam, The Netherlands.
Department of Health Education and Behavioral Sciences, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia.
Glob Public Health. 2025 Dec;20(1):2497918. doi: 10.1080/17441692.2025.2497918. Epub 2025 May 5.
Individuals with stigmatised health conditions face adverse attitudes, social exclusion and discrimination, stemming from preconceived notions about the condition and its associated symptoms or links to disability. Culture plays a role in shaping stigma manifestations. By employing the 'what matters most' framework, this study sought to capture perspectives of men and women living with leprosy, lymphatic filariasis or depressive disorder, and of their families and healthcare providers, regarding key cultural capabilities that 'matter most' for men and women in Cirebon Regency, Indonesia. A total of 91 respondents participated in 45 interviews and 10 focus group discussions. Data were analysed using thematic content analysis and the analysis generated three core cultural themes defined as 'what matters most' in Cirebon Regency: personal responsibilities, marriage and family responsibilities, and community responsibilities. Specifically, recovery-oriented attitudes, family support and community engagement were identified as key cultural engagements that could help people with stigmatised conditions to maintain personhood and mitigate health-related stigma. In conclusion, our findings highlight it is important to consider these cultural capabilities in stigma research, particularly in the design of stigma assessment and stigma-reduction interventions.
患有受歧视健康状况的个体面临着不良态度、社会排斥和歧视，这些都源于对该疾病及其相关症状或与残疾关联的先入之见。文化在塑造耻辱感表现方面发挥着作用。通过采用“最重要的是什么”框架，本研究旨在了解患有麻风病、淋巴丝虫病或抑郁症的男性和女性及其家人和医疗服务提供者对于印度尼西亚井里汶摄政地区男性和女性“最重要”的关键文化能力的看法。共有91名受访者参与了45次访谈和10次焦点小组讨论。使用主题内容分析法对数据进行了分析，分析得出了三个核心文化主题，在井里汶摄政地区被定义为“最重要的是什么”：个人责任、婚姻和家庭责任以及社区责任。具体而言，以康复为导向的态度、家庭支持和社区参与被确定为关键的文化参与因素，它们可以帮助患有受歧视疾病的人保持人格并减轻与健康相关的耻辱感。总之，我们的研究结果强调，在耻辱感研究中，尤其是在耻辱感评估和减少耻辱感干预措施的设计中，考虑这些文化能力非常重要。
