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探究类风湿关节炎患者社会支持与生活质量之间的关联:文献系统综述

Investigating the Association Between Social Support and Quality of Life in People With Rheumatoid Arthritis: A Systematic Review of the Literature.

作者信息

Coyle Noreena, Kuit Stella, Dunne Simon

机构信息

School of Psychology, Dublin City University, Dublin, Ireland.

出版信息

Int J Rheum Dis. 2025 May;28(5):e70234. doi: 10.1111/1756-185X.70234.

Abstract

OBJECTIVE

Rheumatoid arthritis (RA) is a chronic autoimmune disease characterized by symptoms such as pain, inflammation of joints, fatigue, and impaired functionality. Depression and anxiety are common in this population of patients. Research suggests that social support, whether received or perceived, can improve the Quality of Life (QoL) of people with RA. This systematic review examined the relationship between social support and QoL in individuals with RA.

METHODS

Five databases were searched with no restriction on dates. Studies were included if they used validated instruments or interventions and examined the association between QoL and social support in people with RA.

RESULTS

Seventeen studies were included in the review, involving 2043 participants aged 18-88. Overall, the findings suggest that positive social support, whether received or perceived, enhances the QoL of individuals with RA, particularly with their mental health and also with some physical symptoms like pain. However, negative social support was found to have the opposite effect, potentially worsening the QoL for those with RA. Fatigue was also identified as indirectly mediating between social support and its impact on participants' quality of life.

CONCLUSION

The review underscores the significance of social support, especially from family and friends, in shaping the well-being of individuals with RA. The findings highlight the need for further research to better understand the specific types and sources of social support that are most beneficial for improving QoL, and for gold standard measurement instruments for QoL and social support in this population.

摘要

目的

类风湿性关节炎(RA)是一种慢性自身免疫性疾病,其特征表现为疼痛、关节炎症、疲劳以及功能受损等症状。抑郁症和焦虑症在这类患者群体中很常见。研究表明,无论是获得的还是感知到的社会支持,都可以改善类风湿性关节炎患者的生活质量(QoL)。本系统评价研究了类风湿性关节炎患者的社会支持与生活质量之间的关系。

方法

检索了五个数据库,检索无日期限制。如果研究使用了经过验证的工具或干预措施,并研究了类风湿性关节炎患者的生活质量与社会支持之间的关联,则纳入该研究。

结果

该评价纳入了17项研究,涉及2043名年龄在18 - 88岁之间的参与者。总体而言,研究结果表明,无论是获得的还是感知到的积极社会支持,都能提高类风湿性关节炎患者的生活质量,特别是对他们的心理健康以及一些身体症状如疼痛方面。然而,发现消极的社会支持会产生相反的效果,可能会使类风湿性关节炎患者的生活质量恶化。疲劳也被确定为社会支持及其对参与者生活质量影响之间的间接中介因素。

结论

该评价强调了社会支持,尤其是来自家人和朋友的社会支持,对塑造类风湿性关节炎患者幸福感的重要性。研究结果凸显了进一步开展研究的必要性,以更好地理解对改善生活质量最有益的社会支持的具体类型和来源,以及针对该人群生活质量和社会支持的金标准测量工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/444f/12057546/b2f9046e4e85/APL-28-e70234-g001.jpg

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