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患癌及癌症康复后的父母:对未满足的支持性护理需求及其对日常生活影响的范围综述

Parents living with and beyond cancer: A scoping review of unmet supportive care needs and impact on daily life.

作者信息

Newman Robin, Kaldenberg Jennifer, Stursberg Laura, Pinto Brianna, Jimenez Christine, Glazer Kara

机构信息

Department of Occupational Therapy, Boston University College of Health and Rehabilitation Sciences: Sargent College, Boston, MA, USA.

出版信息

Br J Occup Ther. 2023 Sep;86(9):599-614. doi: 10.1177/03080226231183281. Epub 2023 Jul 8.

Abstract

INTRODUCTION

Parenting is a valued and complex role that is shaped by culture and context, which can be significantly impacted by a cancer diagnosis. This scoping review explored the unmet supportive care needs and impact on daily life for parents living with and beyond cancer.

METHODS

We used the PRISMA extension for scoping reviews (PRISMA-ScR) reporting guidelines to conduct a scoping review of the literature. Peer-reviewed literature published between January 2006 and December 2021 was searched using five databases: CINAHL, PsycINFO, PubMed, EMBASE, and Web of Science.

RESULTS

A total of 47 articles were included in the review representing 14 countries. Unmet supportive care needs persist across physical, spiritual, psychological, social, informational, practical, emotional domains, regardless of cancer diagnosis, stage of cancer or phase of the cancer care continuum. These unmet needs significantly impacted the daily lives of mothers and fathers living with and beyond cancer throughout studies.

CONCLUSION

The results from this review highlight the range of reported supportive care needs of parents and its impact potentially contributing to occupational disruption. This provides a unique opportunity for occupational therapy practitioners to contribute to the occupational needs of parents living with and beyond cancer as an integral member of the interprofessional cancer care team.

摘要

引言

育儿是一项重要且复杂的角色,它受到文化和背景的塑造,而癌症诊断可能会对其产生重大影响。本范围综述探讨了癌症患者及其康复后的父母未满足的支持性护理需求以及对日常生活的影响。

方法

我们使用范围综述的PRISMA扩展版(PRISMA-ScR)报告指南对文献进行范围综述。通过五个数据库检索了2006年1月至2021年12月期间发表的同行评审文献:护理学与健康领域数据库(CINAHL)、心理学文摘数据库(PsycINFO)、医学期刊数据库(PubMed)、荷兰医学文摘数据库(EMBASE)和科学引文索引数据库(Web of Science)。

结果

该综述共纳入了代表14个国家的47篇文章。无论癌症诊断情况、癌症阶段或癌症护理连续过程的阶段如何,在身体、精神、心理、社会、信息、实际、情感等领域,未满足的支持性护理需求依然存在。在各项研究中,这些未满足的需求对癌症患者及其康复后的父母的日常生活产生了重大影响。

结论

本综述结果突出了已报告的父母支持性护理需求范围及其可能导致职业中断的影响。这为职业治疗从业者提供了一个独特的机会,使其能够作为跨专业癌症护理团队的重要成员,满足癌症患者及其康复后的父母的职业需求。

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