Faskin Gillian, Hackett Sam
Patient Advocate, Aberdeen Sarcoma Support Group, Aberdeen, Aberdeenshire, Scotland.
Sarcoma UK, 17/18 Angel Gate, City Road, London, UK.
Oncol Ther. 2025 Jun;13(2):293-305. doi: 10.1007/s40487-025-00342-6. Epub 2025 May 13.
Soft-tissue sarcoma is a rare cancer, making up less than 1% of new cancer diagnoses. They comprise tumours of the connective tissue, and as such can arise in any part of the body and can mimic other conditions. In addition, there are over 80 subtypes of sarcoma which, combined with the fact that most general practitioners may only see one case of sarcoma in their working lifetime, makes them difficult to diagnose. Sarcoma UK's national sarcoma survey (2020) showed that 23% of patients started their treatment for an incorrect diagnosis before receiving their correct sarcoma diagnosis. Given the rarity of sarcoma, it is critical that patients are seen by a specialised sarcoma service as soon as possible so that all appropriate treatment pathways can be made available. However, 13% of patients never get to see a specialist multidisciplinary team. It is clear that many challenges remain in identifying patients with sarcoma and ensuring that they receive the best care possible. In this podcast a patient with sarcoma and a specialist sarcoma nurse discuss the patient's journey from initial diagnosis through to treatment and recovery. They will also discuss the physiological, emotional and mental impact that sarcoma had, as well as the critical role of the cancer nurse specialist within the treatment plan, alongside a patient support group. Listeners to the podcast will gain a better understanding of the challenges in diagnosing soft-tissue sarcoma, the tools that are already available to assist physicians in diagnosis, and the importance of providing patients with clear information throughout the treatment journey. Podcast Audio (MP4 804666 KB).
软组织肉瘤是一种罕见的癌症,在新增癌症诊断病例中占比不到1%。它们由结缔组织肿瘤构成,因此可出现在身体的任何部位,并且可能与其他病症相似。此外,肉瘤有80多种亚型,再加上大多数全科医生在其职业生涯中可能只见过一例肉瘤病例,这使得肉瘤难以诊断。英国肉瘤协会的全国肉瘤调查(2020年)显示,23%的患者在获得正确的肉瘤诊断之前就开始了针对错误诊断的治疗。鉴于肉瘤的罕见性,至关重要的是患者应尽快由专业的肉瘤服务机构诊治,以便能提供所有合适的治疗途径。然而,13%的患者从未看过专科多学科团队。显然,在识别肉瘤患者并确保他们获得尽可能最佳的护理方面,仍存在许多挑战。在本期播客中,一名肉瘤患者和一位专业的肉瘤护士讨论了患者从最初诊断到治疗及康复的历程。他们还将讨论肉瘤所产生的生理、情感和心理影响,以及癌症专科护士在治疗计划中的关键作用,还有患者支持小组。播客听众将更好地理解诊断软组织肉瘤的挑战、现有的协助医生诊断的工具,以及在整个治疗过程中为患者提供清晰信息的重要性。播客音频(MP4 804666 KB)。