Tarter Robin, Rabelais Emmeline, Driessnack Martha, Berry Patricia H, Hassouneh Dena
School of Nursing, Oregon Health and Science University, Portland, Oregon, USA.
Interdependent Scholar & Artist, Chicago, Illinois, USA.
Nurs Inq. 2025 Jul;32(3):e70031. doi: 10.1111/nin.70031.
There is extensive evidence for gendered inequities in the intensity and complexity of unpaid care labor for family members with life-limiting illnesses, and in the harmful physical, emotional, and socioeconomic impacts of this labor on those who provide it. Women caring for parents experience disproportionate harms associated their care labor, and those experiencing conflict and lack of choice are especially at risk; yet violence and constraints of agency in the context of care for parents have been largely ignored in nursing scholarship. In this study, we used a feminist poststructuralist theoretical framework to deconstruct dialogic narratives with 16 women who provided end-of-life care to mothers who maltreated them in childhood. We identified "the good family" as a dominant discourse obscuring three subjugated narratives: "recursive assaults on subjectivity," "making a good death for a bad mother," and "medical complicity." These narratives illuminate mechanisms whereby dominant discourse constitutes, and is constituted by, violence perpetrated against daughters in the public and private realms of unpaid care labor for mothers with life-limiting illnesses. By creating and disseminating composite narratives exposing parallel processes of dehumanization and exploitation in cis-hetero-patriarchal family and medical systems, we present a new form of emancipatory praxis for nursing scholars.
有大量证据表明,在为患有危及生命疾病的家庭成员提供无酬护理劳动的强度和复杂性方面,以及在这种劳动对护理者产生的有害身体、情感和社会经济影响方面,存在性别不平等。照顾父母的女性在护理劳动中遭受的伤害尤为严重,而那些经历冲突和缺乏选择权的女性风险尤其高;然而,在护理学术领域,照顾父母过程中的暴力行为和对护理者自主权的限制在很大程度上被忽视了。在本研究中,我们运用女性主义后结构主义理论框架,对16名在童年时期遭受母亲虐待的女性照顾临终母亲的对话式叙述进行了解构。我们发现“好家庭”是一种主导话语,掩盖了三种被压制的叙述:“对主体性的反复攻击”、“为坏母亲创造美好的死亡”和“医疗同谋”。这些叙述揭示了主导话语在为患有危及生命疾病的母亲提供无酬护理劳动的公共和私人领域中,如何构成针对女儿的暴力行为,以及如何被这种暴力行为所构成。通过创造和传播复合叙述,揭示异性恋父权制家庭和医疗系统中并行的非人化和剥削过程,我们为护理学者提出了一种新的解放实践形式。