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探讨卵巢早衰(POI)的情感、社会和伦理方面:个人叙述。

Addressing the Emotional, Social and Ethical Aspects of Premature Ovarian Insufficiency (POI): A Personal Narrative.

作者信息

Boro Hiya

机构信息

Department of Endocrinology, Adhar Hospital, Hisar, Haryana, India.

出版信息

Indian J Endocrinol Metab. 2025 Mar-Apr;29(2):168-169. doi: 10.4103/ijem.ijem_332_24. Epub 2025 Apr 29.

Abstract

Premature Ovarian Insufficiency (POI) poses complex medical, emotional and ethical challenges, especially in conservative societies like India. This narrative highlights an endocrinologist's experience in managing a young woman with POI, emphasizing the profound emotional distress and societal implications, particularly regarding subfertility and an impending marriage. The case explores the nuanced approach required to deliver this life-altering diagnosis with empathy, address the patient's and family's emotional needs, and offer psychological support alongside fertility options and hormone replacement therapy. Ethical considerations, including patient autonomy, confidentiality, and the delicate decision of disclosing the diagnosis to a prospective groom, are also examined. The narrative underscores the importance of cultural sensitivity and the endocrinologist's role in mitigating societal stigma. It illustrates the broader responsibilities of healthcare providers, who must navigate these multifaceted challenges with compassion, providing medical care and emotional and ethical guidance to help patients and their families cope with the impact of POI.

摘要

卵巢早衰(POI)带来了复杂的医学、情感和伦理挑战,在印度这样的保守社会尤其如此。本叙述突出了一位内分泌学家在管理一名患有POI的年轻女性方面的经验,强调了深刻的情感困扰和社会影响,特别是关于生育能力低下和即将到来的婚姻。该案例探讨了以同理心做出这一改变人生的诊断所需的细致入微的方法,满足患者及其家人的情感需求,并在提供生育选择和激素替代疗法的同时提供心理支持。还审视了伦理考量,包括患者自主权、保密性以及向准新郎透露诊断这一微妙决定。该叙述强调了文化敏感性的重要性以及内分泌学家在减轻社会污名方面的作用。它说明了医疗保健提供者的更广泛责任,他们必须以同情心应对这些多方面的挑战,提供医疗护理以及情感和伦理指导,以帮助患者及其家人应对POI的影响。

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本文引用的文献

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Premature ovarian insufficiency.卵巢早衰
BMJ. 2024 Mar 20;384:e077469. doi: 10.1136/bmj-2023-077469.
2
Diagnosis and management of premature ovarian insufficiency.卵巢早衰的诊断与治疗。
Best Pract Res Clin Endocrinol Metab. 2021 Dec;35(6):101600. doi: 10.1016/j.beem.2021.101600. Epub 2021 Nov 16.

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