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怀孕与身体残疾:一项范围综述。

Pregnancy and physical disability: A scoping review.

作者信息

Kalpakjian Claire Z, Mulenga Lukonde, McIntosh Shannen M, Kreschmer Jodi M, Parten Rebecca, Haapala Heidi, Langen Elizabeth S, Rosenblum Sara A S, Pazhyanur Svati, Carlson Susan, Berri Maryam, Ernst Susan D

机构信息

Department of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, USA.

Department of Obstetrics and Gynecology, University of Michigan Medical School, Ann Arbor, USA.

出版信息

Womens Health (Lond). 2025 Jan-Dec;21:17455057251338424. doi: 10.1177/17455057251338424. Epub 2025 May 26.

DOI:10.1177/17455057251338424
PMID:40418752
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12107001/
Abstract

BACKGROUND

Women with disabilities have a similar desire for pregnancy as their non-disabled peers but experience more ambivalence and doubt about their intention to have a child. While many have healthy pregnancies, they face higher risks and trade-offs in health, function, and independence.

OBJECTIVES

To review the literature on pregnancy in women with physical disabilities to guide interventions and clinical care guidelines.

ELIGIBILITY CRITERIA

Abstracts were reviewed if they were original research on pregnancy involving adult women with physical disabilities. Both qualitative and quantitative studies were included, with no restrictions on language or publication year.

SOURCES OF EVIDENCE

PubMed, Scopus, and CINAHL Complete and reference lists of eligible articles.

CHARTING METHODS

Abstracts were eligible for full-text review if they were (1) original research, (2) in humans, (3) about pregnancy, and (4) involved adult women with physical disabilities. Data were extracted by independent reviewers using Covidence software and assessed with a customized critical appraisal guide.

RESULTS

Five major topics characterized 171 reviewed articles: (1) rates of pregnancy, fertility, and termination or loss; (2) pregnancy complications and infant outcomes; (3) effects of pregnancy on physical function disease activity; (4) maternal care; and (5) social and interpersonal dimensions of pregnancy. Most studies were conducted in the Americas and Europe, and high-income countries used a quantitative design and were assessed to have a moderate risk of bias.

CONCLUSIONS

This review highlights the need for future research to (1) build a stronger evidence base for tailored maternal care, (2) examine disability discrimination's impact on pregnancy outcomes, (3) develop interventions to reduce disability-related inequities, and (4) improve disability competence among maternal care providers.

摘要

背景

残疾女性与非残疾同龄人一样有怀孕的意愿,但对生育意愿存在更多的矛盾心理和疑虑。虽然许多人孕期健康,但她们在健康、功能和独立性方面面临更高的风险和权衡。

目的

回顾有关身体残疾女性怀孕的文献,以指导干预措施和临床护理指南。

纳入标准

如果摘要为关于成年身体残疾女性怀孕的原创研究,则予以审查。纳入定性和定量研究,对语言或出版年份无限制。

证据来源

PubMed、Scopus和CINAHL Complete以及符合条件文章的参考文献列表。

制表方法

如果摘要符合以下条件,则有资格进行全文审查:(1)原创研究;(2)以人为研究对象;(3)关于怀孕;(4)涉及成年身体残疾女性。数据由独立评审员使用Covidence软件提取,并根据定制的批判性评价指南进行评估。

结果

171篇被审查文章呈现出五个主要主题:(1)怀孕、生育以及终止妊娠或流产率;(2)妊娠并发症和婴儿结局;(3)怀孕对身体功能疾病活动的影响;(4)孕产妇护理;(5)怀孕的社会和人际层面。大多数研究在美洲和欧洲进行,高收入国家采用定量设计,且被评估存在中度偏倚风险。

结论

本综述强调未来研究需要:(1)为量身定制的孕产妇护理建立更坚实的证据基础;(2)研究残疾歧视对妊娠结局的影响;(3)制定干预措施以减少与残疾相关的不平等现象;(4)提高孕产妇护理提供者的残疾问题处理能力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/8ab68b17795a/10.1177_17455057251338424-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/bac340c377d2/10.1177_17455057251338424-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/0d6e79065f77/10.1177_17455057251338424-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/75ca5ccee54f/10.1177_17455057251338424-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/4c5db3bbc27e/10.1177_17455057251338424-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/8ab68b17795a/10.1177_17455057251338424-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/bac340c377d2/10.1177_17455057251338424-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/0d6e79065f77/10.1177_17455057251338424-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/75ca5ccee54f/10.1177_17455057251338424-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/4c5db3bbc27e/10.1177_17455057251338424-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/756b/12107001/8ab68b17795a/10.1177_17455057251338424-fig5.jpg

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本文引用的文献

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J Womens Health (Larchmt). 2024 Mar;33(3):308-317. doi: 10.1089/jwh.2023.0032. Epub 2023 Dec 8.
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Whose decision? Caesarean section and women with physical disabilities in Northern Vietnam: A qualitative study.谁的决定?越南北部身体残疾的妇女与剖宫产术:一项定性研究。
Midwifery. 2022 Jan;104:103175. doi: 10.1016/j.midw.2021.103175. Epub 2021 Oct 25.
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Pregnancy-related outcomes among women with physical disabilities: A systematic review.
女性身体残疾与妊娠相关结局:系统评价。
Paediatr Perinat Epidemiol. 2021 Nov;35(6):758-778. doi: 10.1111/ppe.12781. Epub 2021 Aug 24.
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Reproductive health and pregnancy experiences of women with spina bifida: A qualitative study.脊髓裂女性的生殖健康和怀孕经历:一项定性研究。
J Pediatr Rehabil Med. 2021;14(4):643-654. doi: 10.3233/PRM-200776.
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"Under great anxiety": Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens.“在巨大的焦虑下”:通过交叉视角看待越南身体残疾女性的怀孕经历。
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Family planning in Argentinian women with multiple sclerosis: An important yet seldom approached issue.阿根廷多发性硬化症女性的计划生育:一个重要但很少被提及的问题。
Mult Scler J Exp Transl Clin. 2021 Jun 16;7(2):20552173211025312. doi: 10.1177/20552173211025312. eCollection 2021 Apr-Jun.
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Trends and projections of caesarean section rates: global and regional estimates.剖宫产率的趋势和预测:全球和区域估计。
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Miscarriage matters: the epidemiological, physical, psychological, and economic costs of early pregnancy loss.流产不容忽视:早期妊娠丢失的流行病学、身体、心理和经济成本。
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Natalizumab, Fingolimod and Dimethyl Fumarate Use and Pregnancy-Related Relapse and Disability in Women With Multiple Sclerosis.那他珠单抗、芬戈莫德和富马酸二甲酯的使用与多发性硬化症女性的妊娠相关复发及残疾情况
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