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一项关于支持面临儿童癌症的父母的干预措施——“ ”的多地点优化研究。 (注:原文中“of”后面似乎缺失了具体内容)

A Multi-Site Refinement Study of , an Intervention to Support Parents Confronted with Childhood Cancer.

作者信息

Guarascio Nikita, Levesque Ariane, Ogez David, Marcil Valérie, Curnier Daniel, Bélanger Véronique, Rondeau Émélie, Péloquin Katherine, Laverdière Caroline, Santiago Raoul, Brossard Josée, Vairy Stéphanie, Sultan Serge, Team The Tbct-Québec

机构信息

Department of Psychology, Université de Montréal, Montreal, QC H2V 2S9, Canada.

Azrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, Canada.

出版信息

Curr Oncol. 2025 Apr 26;32(5):253. doi: 10.3390/curroncol32050253.


DOI:10.3390/curroncol32050253
PMID:40422512
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12109647/
Abstract

A child's cancer diagnosis profoundly impacts the psychological well-being of parents. To alleviate parental distress, researchers developed (TBCT), a manualized six-session program targeting individual problem-solving skills and dyadic coping. The current study aimed to refine TBCT for future uptake across different sites. We invited potential interventionists and local stakeholders from three pediatric oncology centers (CHU Sainte-Justine, CHU de Sherbrooke, and CHU de Québec) to join the refinement team. The final working team comprised 26 professionals, including social workers, psychologists, researchers, coordinators, and parent-partners. The study included eight 50- to 90-min discussion sessions designed to stimulate conversation and facilitate the exchange of ideas and perspectives. We used framework analysis to identify and describe patterns within the qualitative data. The data were organized into three categories: (1) intervention description, which addresses changes in personnel, modes of delivery, and tailoring to accommodate different family structures; (2) content modifications, which include language simplification and visual enhancements; and (3) factors influencing TBCT's future uptake, such as accessibility, participant satisfaction, clinician compensation, and flexibility in program delivery. The direct output of this research is a refined program with an updated manual, tools, and format adapted for use in different sites.

摘要

儿童癌症诊断对父母的心理健康有着深远影响。为减轻父母的痛苦,研究人员开发了以问题为中心的夫妻疗法(TBCT),这是一个为期六节的手册化项目,旨在培养个人解决问题的能力和二元应对能力。本研究旨在完善TBCT,以便未来能在不同地点采用。我们邀请了来自三个儿科肿瘤中心(圣贾斯汀大学医疗中心、舍布鲁克大学医疗中心和魁北克大学医疗中心)的潜在干预人员和当地利益相关者加入完善团队。最终的工作团队由26名专业人员组成,包括社会工作者、心理学家、研究人员、协调员和家长合作伙伴。该研究包括八次时长50至90分钟的讨论会,旨在激发讨论并促进观点和看法的交流。我们使用框架分析来识别和描述定性数据中的模式。数据分为三类:(1)干预描述,涉及人员变动、交付方式以及为适应不同家庭结构而进行的调整;(2)内容修改,包括语言简化和视觉增强;(3)影响TBCT未来采用的因素,如可及性、参与者满意度、临床医生薪酬以及项目交付的灵活性。这项研究的直接成果是一个经过完善的项目,配有更新后的手册、工具和格式,适合在不同地点使用。

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本文引用的文献

[1]
Revolutionizing Healthcare: How Telemedicine Is Improving Patient Outcomes and Expanding Access to Care.

Cureus. 2024-7-5

[2]
Feasibility Study of Taking Back Control Together, an Intervention to Support Parents of Children with Cancer.

J Clin Psychol Med Settings. 2024-6

[3]
Using framework analysis methods for qualitative research: AMEE Guide No. 164.

Med Teach. 2024-5

[4]
The State of Telehealth Before and After the COVID-19 Pandemic.

Prim Care. 2022-12

[5]
Quantifying the Societal Benefits From Telehealth: Productivity and Reduced Travel.

Value Health Reg Issues. 2022-3

[6]
Understanding and applying the RE-AIM framework: Clarifications and resources.

J Clin Transl Sci. 2021-5-14

[7]
Using RE-AIM to examine the potential public health impact of an integrated collaborative care intervention for weight and depression management in primary care: Results from the RAINBOW trial.

PLoS One. 2021

[8]
Designing and undertaking randomised implementation trials: guide for researchers.

BMJ. 2021-1-18

[9]
Telehealth Benefits and Barriers.

J Nurse Pract. 2021-2

[10]
Prevalence of anxiety, depression, and posttraumatic stress disorder in parents of children with cancer: A meta-analysis.

Pediatr Blood Cancer. 2019-2-28

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