Rodrigues Diana Fonseca, Carvalho António Luís Rodrigues Faria de, Pinto Cristina Maria Correia Barroso
Universidade do Porto, Faculdade de Medicina, RISE-Health, Porto, Portugal.
Universidade do Porto, Instituto de Ciências Biomédicas Abel Salazar, Porto, Portugal.
Rev Esc Enferm USP. 2025 May 26;59:e20240264. doi: 10.1590/1980-220X-REEUSP-2024-0264en. eCollection 2025.
To explore the experiences of family caregivers transitioning to their roles of caregivers for people with dysvascular major lower limb amputation, identify the challenges they face, understand their specific needs during this transition, examine their experiences during the hospital-to-home transition, and gather insights into strategies that promote empowerment in caregiving.
This exploratory, cross-sectional descriptive study employed a qualitative approach, conducting semi-structured interviews with 40 family caregivers of individuals with dysvascular major lower limb amputation. Data were analyzed using ATLAS.ti software and Bardin's content analysis method.
Content analysis identified five categories: 1) family caregiver role, 2) amputee needs/difficulties, 3) family caregiver needs/difficulties, 4) home transition, and 5) strategies to promote family caregiver empowerment, highlighting critical aspects of the caregiving experience and identifying areas for intervention.
The findings emphasize the need for family-centered empowerment programs combining hospital-based training with community support. Future research should evaluate their impact on reducing caregiver burden and improving outcomes for both caregivers and amputees.
探讨家庭照顾者向血管性大下肢截肢患者照顾者角色转变的经历，确定他们面临的挑战，了解他们在这一转变过程中的特殊需求，考察他们在从医院到家过渡期间的经历，并收集有关促进照顾者赋权策略的见解。
本探索性横断面描述性研究采用定性方法，对40名血管性大下肢截肢患者的家庭照顾者进行半结构化访谈。使用ATLAS.ti软件和巴丁内容分析法对数据进行分析。
内容分析确定了五个类别：1）家庭照顾者角色，2）截肢者需求/困难，3）家庭照顾者需求/困难，4）家庭过渡，5）促进家庭照顾者赋权的策略，突出了照顾经历的关键方面并确定了干预领域。
研究结果强调了以家庭为中心的赋权项目的必要性，该项目应将基于医院的培训与社区支持相结合。未来的研究应评估它们对减轻照顾者负担以及改善照顾者和截肢者结局的影响。
