在儿科特应性皮炎常规护理中收集患者报告结局的可行性和可接受性。
Feasibility and Acceptability of Patient-Reported Outcomes Collection in Routine Pediatric Atopic Dermatitis Care.
作者信息
Chang Hannah R, Su Hsing-Jou, Kartawira Karin, Grossberg Anna, Wan Joy
机构信息
University of Texas Southwestern Medical School, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Department of Dermatology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
出版信息
Pediatr Dermatol. 2025 May 31. doi: 10.1111/pde.15972.
Atopic dermatitis (AD) is a common and chronic skin disease that adversely impacts physical, mental, and social health. Because patients' experience of AD may not correlate with traditional clinician-reported assessments of disease burden, patient-reported outcomes (PROs) are important for understanding the full experience of AD in children and their caregivers. In this pilot study involving 153 children with AD, we found that collecting PROs during routine pediatric AD care is both feasible and acceptable. These findings support future efforts to implement PROs in clinical practice to promote patient-centered care and facilitate shared decision-making.
特应性皮炎（AD）是一种常见的慢性皮肤病，会对身体、心理和社会健康产生不利影响。由于患者的特应性皮炎经历可能与传统临床医生报告的疾病负担评估不相关，因此患者报告结局（PROs）对于了解儿童及其照顾者的特应性皮炎全貌很重要。在这项涉及153名特应性皮炎儿童的试点研究中，我们发现，在常规儿科特应性皮炎护理期间收集患者报告结局既可行又可接受。这些发现支持未来在临床实践中实施患者报告结局的努力，以促进以患者为中心的护理并推动共同决策。
Zotero 插件