Juvik Lill Anette, Andersen John Roger, Indrebø Kirsten Lerum, Sandvoll Anne Marie
Department of Surgery, Førde Hospital Trust, Førde, Norway.
Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Førde, Norway.
J Patient Rep Outcomes. 2025 May 31;9(1):61. doi: 10.1186/s41687-025-00900-6.
Adapting to life with an ostomy can be challenging due to significant bodily changes. To better meet patients' needs and support their adjustment, a clinical feedback system (CFS) with patient-reported outcomes was developed for routine outpatient follow-up consultations with stoma care nurses (SCNs) in specialist health care services. While results from its use prior to consultations are promising, little is known about patients' perceptions of CFS use in consultations with SCNs. Thus, we aimed to explore how patients experience the routine use of the CFS during follow-up consultations in ostomy care.
An inductive qualitative design was employed, involving semi-structured individual interviews with 27 patients using the CFS as part of routine care. Data were analysed using reflexive thematic analysis.
The overarching theme, "A flexible, engaged, person-centred follow-up," was developed, along with four themes: (1) Explicit and implicit use of information in consultations, (2) A springboard for deeper dialogue on sensitive issues, (3) Reassurance that changes in health status will be captured and adequately assessed, and (4) Utility depends on continuity of use. There were variations in how patients experienced their responses being utilised by the SCNs during consultations. Responses were referenced implicitly and explicitly, with a preference for direct communication. Patients found personal value in using the CFS, as it facilitated communication, particularly on sensitive topics. SCNs' use of the CFS and expertise provided a sense of reassurance when health status was assessed. Regular use of the CFS and a clear understanding of its purpose enhanced its utility and enabled patients to take a more active role in their treatment.
The use of the CFS in ostomy care appears promising. It can improve SCNs' ability to tailor care to patients' needs. However, the tool should be applied consistently to realise its full potential in clinical practice.
由于身体发生重大变化，适应造口生活可能具有挑战性。为了更好地满足患者需求并支持他们的调整，开发了一种具有患者报告结果的临床反馈系统（CFS），用于专科医疗服务中与造口护理护士（SCN）进行的常规门诊随访咨询。虽然在咨询前使用该系统的结果很有前景，但对于患者在与SCN的咨询中对CFS使用的看法知之甚少。因此，我们旨在探讨患者在造口护理随访咨询期间如何体验CFS的常规使用。
采用归纳性定性设计，对27名将CFS作为常规护理一部分的患者进行半结构化个人访谈。使用反思性主题分析法对数据进行分析。
得出了总体主题“灵活、积极参与、以患者为中心的随访”以及四个主题：（1）咨询中信息的明确和隐含使用；（2）关于敏感问题进行更深入对话的跳板；（3）确信健康状况的变化将被记录并得到充分评估；（4）效用取决于使用的连续性。患者在咨询期间体验到SCN如何利用他们的回答存在差异。回答被隐含和明确地引用，更倾向于直接沟通。患者发现使用CFS具有个人价值，因为它促进了沟通，特别是在敏感话题上。在评估健康状况时，SCN对CFS的使用和专业知识提供了一种安心感。定期使用CFS并清楚了解其目的可提高其效用，并使患者能够在治疗中发挥更积极的作用。
在造口护理中使用CFS似乎很有前景。它可以提高SCN根据患者需求提供个性化护理的能力。然而，该工具应持续应用以在临床实践中充分发挥其潜力。
