Rosenlund Lena, Jakobsson Sofie, Lloyd Helen, Diffner Anna, Lundgren-Nilsson Åsa, Dencker Anna
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
Nurs Open. 2025 Jan;12(1):e70133. doi: 10.1002/nop2.70133.
To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long-term conditions.
A qualitative descriptive study design.
Semi-structured individual interviews were conducted with 15 persons with long-term condition/s who experienced outpatient treatment or follow-up care. Data were explored through inductive thematic analysis. The COREQ checklist was followed.
The analysis revealed five themes: adapting and self-managing in daily life, handling and carrying information, building trust and continuity, acting in a flexible and transparent dialogue and sharing the way forward. The participants described their personal and informal resources, and their actions to take control and manage health and well-being. A person-centred approach, sharing of knowledge and communication skills enabled the development of trust in the healthcare providers and their treatment and care. Communication was facilitated through availability, shared documentation, continuity and coordination of care. Collaboration was described as a flexible dialogue with mutual trust and transparency, shared learning and problem-solving. Sharing the way forward was a process, alongside and important to the life-changing process to cope with the illness.
Prerequisites for the collaboration in outpatient settings were availability, continuity and a healthcare system that acknowledged, empowered and adapted to patients' health status, resources, everyday life and a patient's coping processes to manage their disease. For a co-created, person-centred outpatient care, it is important to acknowledge and/or collaborate with the patient's team of other healthcare providers and informal caregivers.
The study contributes to better understanding of patient preferences and prerequisites how to work in partnership and how to develop future services and person-centred care for persons living with long-term conditions.
Patients included in this study were participants during the data collection process.
从慢性病患者的经历中探索门诊护理环境下患者与专业人员合作关系中的沟通与协作特点。
定性描述性研究设计。
对15名患有慢性病并接受门诊治疗或后续护理的患者进行了半结构化个人访谈。通过归纳主题分析对数据进行探究。遵循COREQ清单。
分析揭示了五个主题：日常生活中的适应与自我管理、信息处理与传递、建立信任与连续性、在灵活透明的对话中行动以及共同规划未来。参与者描述了他们的个人和非正式资源，以及他们为掌控和管理健康与幸福所采取的行动。以患者为中心的方法、知识共享和沟通技巧促进了对医疗服务提供者及其治疗与护理的信任。通过可及性、共享文档、护理的连续性和协调性促进了沟通。协作被描述为一种具有相互信任和透明度、共享学习与解决问题的灵活对话。共同规划未来是一个过程，与应对疾病的生活改变过程并行且重要。
门诊环境下协作的前提条件是可及性、连续性以及一个认可、赋能并适应患者健康状况、资源、日常生活和患者应对疾病过程的医疗系统。对于共同创建的、以患者为中心的门诊护理而言，承认并/或与患者的其他医疗服务提供者团队及非正式护理人员协作很重要。
该研究有助于更好地理解患者偏好以及如何开展合作关系、如何为慢性病患者开发未来服务和以患者为中心的护理的前提条件。
本研究纳入的患者是数据收集过程中的参与者。
