“我们变了，世界也变了”：利用新冠疫情知识改善癌症幸存者及其照护者的自我管理
"We've Changed, the World's Changed": Leveraging Knowledge from COVID-19 to Improve Self-management for Cancer Survivors and Care Partners.
作者信息
Mansfield Kelly J, Wawryznski Sarah E, Vega Marilisa, Kent-Marvick Jacqueline, Guo Jia-Wen, Cloyes Kristin G
机构信息
College of Nursing, University of Utah, Salt Lake City, Utah (Drs Mansfield, Kent-Marvick, and Guo, and Ms Vega); Center for Healthcare Delivery Science, Nemours Children's Hospital, Wilmington, Delaware (Dr Wawrzynski); Oregon Health and Sciences University, Portland, Oregon (Dr Cloyes).
出版信息
Cancer Care Res Online. 2025 Jan;5(1). doi: 10.1097/cr9.0000000000000066. Epub 2024 Dec 11.
BACKGROUND
During the COVID-19 pandemic, cancer survivors and care partners navigated social interactions amidst the uncertainties of cancer-related vulnerability and risk. Vaccination offered a new tool for self-management yet created potential for conflict within survivors' and care partners' social networks.
OBJECTIVE
We examined cancer survivors' and care partners' perceptions of the impact of vaccine availability on social interactions.
METHODS
In May 2021, survivor and care partner participants in a prospective study of social support network interactions (N=64) were invited to complete an online survey about COVID-19 vaccination and record an audio diary describing the impact of vaccine availability. Descriptive statistics summarized demographic data. Audio diaries were transcribed, inductively coded, and themes developed and narratively summarized.
RESULTS
Twenty-seven participants (42.9%) completed the survey and n=21 (33.3%; n=8 caregivers, 38.1%, n=13 survivors, 61.9%) recorded diaries. Eighty percent (n=21) of the sample received the COVID-19 vaccine. Two themes illustrated the impact of COVID-19 vaccines within a cancer context: Providing hope and Reconnecting with life.
CONCLUSION
Vaccination decisions allowed many cancer survivors and partners to reengage with their social networks. With limited guidance, many relied on their own knowledge, values, and experiences to determine how to preserve their health.
IMPLICATIONS FOR PRACTICE
Utilizing a shared decision-making model, nurses can help families develop strategies that enact their values to promote long-term health. Nursing education and support can be further strengthened to create patient self-efficacy when navigating social interactions in the post-COVID era.
FOUNDATIONAL
This study addresses the need for improved self-management strategies for cancer survivors.
背景
在新冠疫情期间，癌症幸存者及其护理伙伴在癌症相关的脆弱性和风险的不确定性中应对社交互动。疫苗接种提供了一种自我管理的新工具，但也在幸存者和护理伙伴的社交网络中引发了冲突的可能性。
目的
我们研究了癌症幸存者及其护理伙伴对疫苗可得性对社交互动影响的看法。
方法
2021年5月，邀请参与社会支持网络互动前瞻性研究的幸存者和护理伙伴参与者（N = 64）完成一项关于新冠疫苗接种的在线调查，并记录一篇音频日记，描述疫苗可得性的影响。描述性统计总结了人口统计学数据。音频日记被转录、进行归纳编码，形成主题并进行叙述性总结。
结果
27名参与者（42.9%）完成了调查，21名（33.3%；8名护理人员，38.1%，13名幸存者，61.9%）记录了日记。80%（n = 21）的样本接种了新冠疫苗。两个主题说明了新冠疫苗在癌症背景下的影响：带来希望和重新融入生活。
结论
疫苗接种决定使许多癌症幸存者及其伴侣能够重新参与社交网络。由于指导有限，许多人依靠自己的知识、价值观和经验来决定如何维护自身健康。
对实践的启示
利用共同决策模型，护士可以帮助家庭制定能够践行其价值观以促进长期健康的策略。在新冠后时代应对社交互动时，可进一步加强护理教育和支持，以增强患者的自我效能感。
基础
本研究满足了癌症幸存者对改进自我管理策略的需求。
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