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本文引用的文献

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Cancer Survivors' and Care Partners' Audio Diaries on Stress and Social Support Resources During the COVID-19 Pandemic.癌症幸存者和护理伙伴在 COVID-19 大流行期间关于压力和社会支持资源的音频日记。
Semin Oncol Nurs. 2024 Apr;40(2):151623. doi: 10.1016/j.soncn.2024.151623. Epub 2024 Mar 27.
2
Adherence to Physical Distancing and Health Beliefs About COVID-19 Among Patients With Cancer.癌症患者对 COVID-19 的物理距离和健康信念的坚持。
J Korean Med Sci. 2023 Nov 6;38(43):e336. doi: 10.3346/jkms.2023.38.e336.
3
Cancer survivors with sub-optimal patient-centered communication before and during the early COVID-19 pandemic.癌症幸存者在 COVID-19 大流行之前和早期期间的患者为中心的沟通效果不佳。
Patient Educ Couns. 2023 Oct;115:107876. doi: 10.1016/j.pec.2023.107876. Epub 2023 Jun 28.
4
A systematic review and meta-analysis of 90 cohort studies of social isolation, loneliness and mortality.一项对 90 项社会隔离、孤独与死亡率的队列研究的系统评价和荟萃分析。
Nat Hum Behav. 2023 Aug;7(8):1307-1319. doi: 10.1038/s41562-023-01617-6. Epub 2023 Jun 19.
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Disruption in Cancer Care During Early Survivorship due to the COVID-19 Pandemic and Patient Satisfaction with Telemedicine.由于 COVID-19 大流行,癌症患者在早期康复阶段的护理受到干扰,以及患者对远程医疗的满意度。
Support Care Cancer. 2023 Apr 21;31(5):291. doi: 10.1007/s00520-023-07767-7.
6
Impact of Social Isolation, Physician-Patient Communication, and Self-perception on the Mental Health of Patients With Cancer and Cancer Survivors: National Survey Analysis.社会隔离、医患沟通和自我认知对癌症患者及癌症幸存者心理健康的影响:全国调查分析
Interact J Med Res. 2023 Apr 7;12:e45382. doi: 10.2196/45382.
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Loneliness, social isolation, and all-cause mortality in the United States.美国的孤独、社会隔离与全因死亡率
SSM Ment Health. 2021 Dec;1. doi: 10.1016/j.ssmmh.2021.100014. Epub 2021 Aug 8.
8
COVID-19 and Other Underlying Causes of Cancer Deaths - United States, January 2018-July 2022.COVID-19 与其他癌症死亡原因 - 美国,2018 年 1 月-2022 年 7 月。
MMWR Morb Mortal Wkly Rep. 2022 Dec 16;71(50):1583-1588. doi: 10.15585/mmwr.mm7150a3.
9
COVID-19 vaccine acceptance and hesitancy among patients with cancer: a systematic review and meta-analysis.癌症患者对 COVID-19 疫苗的接受度和犹豫:系统评价和荟萃分析。
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“我们变了,世界也变了”:利用新冠疫情知识改善癌症幸存者及其照护者的自我管理

"We've Changed, the World's Changed": Leveraging Knowledge from COVID-19 to Improve Self-management for Cancer Survivors and Care Partners.

作者信息

Mansfield Kelly J, Wawryznski Sarah E, Vega Marilisa, Kent-Marvick Jacqueline, Guo Jia-Wen, Cloyes Kristin G

机构信息

College of Nursing, University of Utah, Salt Lake City, Utah (Drs Mansfield, Kent-Marvick, and Guo, and Ms Vega); Center for Healthcare Delivery Science, Nemours Children's Hospital, Wilmington, Delaware (Dr Wawrzynski); Oregon Health and Sciences University, Portland, Oregon (Dr Cloyes).

出版信息

Cancer Care Res Online. 2025 Jan;5(1). doi: 10.1097/cr9.0000000000000066. Epub 2024 Dec 11.

DOI:10.1097/cr9.0000000000000066
PMID:40452813
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12124841/
Abstract

BACKGROUND

During the COVID-19 pandemic, cancer survivors and care partners navigated social interactions amidst the uncertainties of cancer-related vulnerability and risk. Vaccination offered a new tool for self-management yet created potential for conflict within survivors' and care partners' social networks.

OBJECTIVE

We examined cancer survivors' and care partners' perceptions of the impact of vaccine availability on social interactions.

METHODS

In May 2021, survivor and care partner participants in a prospective study of social support network interactions (N=64) were invited to complete an online survey about COVID-19 vaccination and record an audio diary describing the impact of vaccine availability. Descriptive statistics summarized demographic data. Audio diaries were transcribed, inductively coded, and themes developed and narratively summarized.

RESULTS

Twenty-seven participants (42.9%) completed the survey and n=21 (33.3%; n=8 caregivers, 38.1%, n=13 survivors, 61.9%) recorded diaries. Eighty percent (n=21) of the sample received the COVID-19 vaccine. Two themes illustrated the impact of COVID-19 vaccines within a cancer context: Providing hope and Reconnecting with life.

CONCLUSION

Vaccination decisions allowed many cancer survivors and partners to reengage with their social networks. With limited guidance, many relied on their own knowledge, values, and experiences to determine how to preserve their health.

IMPLICATIONS FOR PRACTICE

Utilizing a shared decision-making model, nurses can help families develop strategies that enact their values to promote long-term health. Nursing education and support can be further strengthened to create patient self-efficacy when navigating social interactions in the post-COVID era.

FOUNDATIONAL

This study addresses the need for improved self-management strategies for cancer survivors.

摘要

背景

在新冠疫情期间,癌症幸存者及其护理伙伴在癌症相关的脆弱性和风险的不确定性中应对社交互动。疫苗接种提供了一种自我管理的新工具,但也在幸存者和护理伙伴的社交网络中引发了冲突的可能性。

目的

我们研究了癌症幸存者及其护理伙伴对疫苗可得性对社交互动影响的看法。

方法

2021年5月,邀请参与社会支持网络互动前瞻性研究的幸存者和护理伙伴参与者(N = 64)完成一项关于新冠疫苗接种的在线调查,并记录一篇音频日记,描述疫苗可得性的影响。描述性统计总结了人口统计学数据。音频日记被转录、进行归纳编码,形成主题并进行叙述性总结。

结果

27名参与者(42.9%)完成了调查,21名(33.3%;8名护理人员,38.1%,13名幸存者,61.9%)记录了日记。80%(n = 21)的样本接种了新冠疫苗。两个主题说明了新冠疫苗在癌症背景下的影响:带来希望和重新融入生活。

结论

疫苗接种决定使许多癌症幸存者及其伴侣能够重新参与社交网络。由于指导有限,许多人依靠自己的知识、价值观和经验来决定如何维护自身健康。

对实践的启示

利用共同决策模型,护士可以帮助家庭制定能够践行其价值观以促进长期健康的策略。在新冠后时代应对社交互动时,可进一步加强护理教育和支持,以增强患者的自我效能感。

基础

本研究满足了癌症幸存者对改进自我管理策略的需求。