Nebel Lisa, Le Butt Timothy R, Herrmann-Lingen Christoph, Broschmann Daniel
Department of Psychosomatic Medicine and Psychotherapy, University Medical Center Göttingen, Von-Siebold-Str. 5, Göttingen, 37075, Germany.
German Center for Cardiovascular Research (DZHK), Partner Site Göttingen, Robert-Koch-Str. 42a, Göttingen, 37075, Germany.
Health Qual Life Outcomes. 2025 Jun 4;23(1):56. doi: 10.1186/s12955-025-02388-6.
This meta-synthesis challenges the medical notion of health-related quality of life (HRQOL) by identifying aspects of the more holistic philosophical concept of the good life from the perspective of patients with heart disease.
Systematic meta-synthesis.
Following preregistration on PROSPERO, a systematic literature search was conducted in PubMed, PsycInfo, PsycArticles, and PSYNDEX from February 2023 to March 2024. Studies focusing on the experiences of adults living with heart disease were included based on predefined criteria. Articles were assessed for methodological quality using a modified CASP tool, and data synthesis followed Interpretative Phenomenological Analysis. Reporting adheres to PRISMA and ENTREQ guidelines.
Forty-three articles were included, revealing the overarching theme of "Working towards a new normal," with four sub-themes: (1) Feeling safe in my own body again, (2) Important relationships provide security and meaning, (3) Taking my life into my own hands again and (4) Living more consciously.
While HRQOL is a valuable and widely used concept, it primarily captures quality of life from a functional perspective. Qualitative studies on individuals with heart disease reveal the additional aspects of coherence, connectedness, and self-determination that align more closely with the concept of a good life.
To enhance care and counseling for patients with heart disease, the concept of HRQOL should be broadened to incorporate preferences, interests, and needs regarding life planning, aligned with the notion of a good life.
本元综合研究通过从心脏病患者的角度识别美好生活这一更全面哲学概念的各个方面，对健康相关生活质量（HRQOL）的医学概念提出挑战。
系统元综合研究。
在PROSPERO上预先注册后，于2023年2月至2024年3月在PubMed、PsycInfo、PsycArticles和PSYNDEX中进行了系统的文献检索。根据预先确定的标准纳入关注成年心脏病患者经历的研究。使用改良的CASP工具评估文章的方法学质量，并采用解释性现象学分析进行数据综合。报告遵循PRISMA和ENTREQ指南。
纳入了43篇文章，揭示了“努力迈向新常态”这一总体主题，并有四个子主题：（1）再次在自己的身体里感到安全，（2）重要的人际关系提供安全感和意义，（3）再次掌控自己的生活，（4）更有意识地生活。
虽然HRQOL是一个有价值且广泛使用的概念，但它主要从功能角度捕捉生活质量。对心脏病患者的定性研究揭示了与美好生活概念更紧密契合的连贯性、关联性和自我决定等其他方面。
为加强对心脏病患者的护理和咨询，应拓宽HRQOL的概念，纳入与生活规划相关的偏好、兴趣和需求，使其与美好生活的概念相一致。
