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本文引用的文献

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A Photo-Narrative Intervention for Children With Severe Neurological Impairment in the PICU.针对儿科重症监护病房中患有严重神经损伤儿童的照片叙事干预
J Pain Symptom Manage. 2025 Apr;69(4):319-330.e10. doi: 10.1016/j.jpainsymman.2024.11.021. Epub 2024 Dec 14.
2
Candidacy Decisions for Long-term Ventilation.长期通气的候选决策。
Pediatrics. 2024 Dec 1;154(6). doi: 10.1542/peds.2024-066985.
3
Complex Decision-Making in Paediatric Intensive Care: A Discussion Paper and Suggested Model.儿科重症监护中的复杂决策：一篇讨论文章及建议模型
J Bioeth Inq. 2024 Oct 4. doi: 10.1007/s11673-024-10381-9.
4
"I'm completely off base here on what this child is capable of": A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment.“在这个孩子的能力方面，我完全偏离了正轨”：对医疗能力歧视如何在儿科重症监护室临床医生对严重神经损伤儿童的护理中表现出来的定性分析。
Disabil Health J. 2025 Jan;18(1):101691. doi: 10.1016/j.dhjo.2024.101691. Epub 2024 Aug 23.
5
Recurrent Intensive Care Episodes and Mortality Among Children With Severe Neurologic Impairment.反复发作的重症神经损伤儿童的重症监护事件和死亡率。
JAMA Netw Open. 2024 Mar 4;7(3):e241852. doi: 10.1001/jamanetworkopen.2024.1852.
6
Admission Functional Status is Associated With Intensivists Perception of Extracorporeal Membrane Oxygenation Candidacy for Pediatric Acute Respiratory Failure.入院时的功能状态与重症监护医生对小儿急性呼吸衰竭体外膜肺氧合治疗适宜性的认知相关。
Pediatr Crit Care Med. 2024 Apr 1;25(4):354-361. doi: 10.1097/PCC.0000000000003428. Epub 2023 Dec 15.
7
Reducing Moral Distress by Teaching Healthcare Providers the Concepts of Values Pluralism and Values Imposition.通过教授医疗保健提供者价值观多元化和价值观强加的概念来减少道德困境。
J Clin Ethics. 2023 Winter;34(4):296-306. doi: 10.1086/727437.
8
Appreciating the Abilities of Children With Severe Neurologic Impairment.认识患有严重神经功能障碍儿童的能力。
Hosp Pediatr. 2023 Dec 1;13(12):e392-e394. doi: 10.1542/hpeds.2023-007463.
9
Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity.儿童医疗复杂性患者感知到的医疗保健中的残疾歧视。
Pediatrics. 2023 Jul 1;152(1). doi: 10.1542/peds.2022-060975.
10
Clinical characteristics of children with severe neurologic impairment: A scoping review.严重神经功能障碍儿童的临床特征：范围综述。
J Hosp Med. 2023 Jan;18(1):65-77. doi: 10.1002/jhm.13019. Epub 2022 Dec 8.

Improving Access to Technology-Driven Critical Care Interventions in Children With Severe Neurological Impairment.

作者信息

Kingsley Jenny, Bogetz Jori, Ames Stefanie G, Wightman Aaron, Moynihan Katie

机构信息

Division of Critical Care Medicine, Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA.

Center for Bioethics, Children's Hospital Los Angeles, Los Angeles, CA.

出版信息

Pediatr Crit Care Med. 2025 Aug 1;26(8):e1070-e1074. doi: 10.1097/PCC.0000000000003775. Epub 2025 Jun 6.

DOI:10.1097/PCC.0000000000003775
PMID:40476840
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12331429/
Abstract
摘要