Mateo-Arriero Irene, Perry Yael, Ohan Jeneva L
School of Psychological Science, The University of Western Australia, 35 Stirling Hwy, Crawley, WA, 6009, Australia.
The Kids Research Institute Australia, 15 Hospital Ave, Nedlands, WA, 6009, Australia.
Child Psychiatry Hum Dev. 2025 Jun 9. doi: 10.1007/s10578-025-01863-x.
Parents of children with attention-deficit/hyperactivity disorder (ADHD) often make disclosure decisions about their child's ADHD on their behalf. While disclosure can facilitate access to support, it risks stigma. Despite ADHD being one of the most common neurodevelopmental conditions, little is known about parent's experiences in relating information about their child's ADHD diagnosis or medication use, to others. This study aimed to understand this decision-making process in parents of children with ADHD. Fifteen parents completed semi-structured interviews about their lived experience of making these decisions. Reflexive thematic analysis was used to analyse the data. Five themes were organised to follow parents' decision-making process, starting with 'consider who to tell', followed by themes reflecting different disclosure goals: benefit the child, manage stigma, access support, and express identity. Findings highlighted a lack of support for parents through this decision-making process, and the opportunity to develop ways to provide this support in the future.
患有注意力缺陷多动障碍(ADHD)儿童的家长常常会代表孩子做出关于其ADHD的信息披露决定。虽然披露信息有助于获得支持,但也存在遭受污名化的风险。尽管ADHD是最常见的神经发育疾病之一,但对于家长向他人透露其孩子ADHD诊断或用药情况的经历,我们却知之甚少。本研究旨在了解ADHD儿童家长的这一决策过程。15位家长完成了关于他们做出这些决定的生活经历的半结构化访谈。采用反思性主题分析法对数据进行分析。按照家长的决策过程组织了五个主题,首先是“考虑告知对象”,随后是反映不同披露目标的主题:使孩子受益、应对污名、获得支持以及表达身份认同。研究结果凸显出在这一决策过程中家长缺乏支持,以及未来有机会开发提供此类支持的方法。