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医疗众筹中的健康不平等:一项系统综述。

Health inequities in medical crowdfunding: a systematic review.

作者信息

Cai Yingying, Kamarudin Syafila, Jiang Xiaoyu, Zhou Baiyu

机构信息

Department of Communication, Universiti Putra Malaysia, Serdang, Selangor, Malaysia.

Institute for Social Science Studies, Universiti Putra Malaysia, Serdang, Selangor, Malaysia.

出版信息

Int J Equity Health. 2025 Jun 10;24(1):166. doi: 10.1186/s12939-025-02543-x.

Abstract

BACKGROUND

Medical crowdfunding has emerged as a popular strategy to offset healthcare expenses in contexts of limited insurance coverage. While often framed as a democratizing and accessible financial tool, growing evidence indicates that success is unevenly distributed, raising concerns about its role in exacerbating health inequities.

METHODS

A systematic review was conducted in accordance with PRISMA guidelines, drawing from PubMed, CINAHL, Embase, Web of Science, and Scopus. Of 1,462 screened records, 33 studies met the inclusion criteria. Guided by the PROGRESS framework, we extracted data on socioeconomic determinants of health disparities. An inductive content analysis was employed to identify how equity was assessed across studies.

RESULTS

We identified three key categories of metrics used to assess equity in medical crowdfunding: funding outcomes, campaign visibility, and donor participation. Across these domains, substantial disparities were observed. Campaigns in rural or economically disadvantaged areas tended to have lower success rates. Racial and ethnic inequities were consistently documented, with non-white individuals receiving fewer and smaller donations than white counterparts. Gender disparities were complex, especially in transgender-related campaigns. Socioeconomic status and educational attainment were significantly associated with outcomes, accompanied by differences in access to social capital and the ability to craft persuasive narratives. In regions with high medical debt or limited insurance coverage, more crowdfunding campaigns appeared, but with lower overall success. These inequities were shaped and reinforced by platform algorithms and design features that privileged users with preexisting advantages.

CONCLUSIONS

Rather than serving as a corrective to healthcare access gaps, medical crowdfunding often reflects and reinforces structural inequities. These findings challenge its portrayal as an equitable financing solution and highlight the need for policy interventions to ensure fairer access to healthcare resources.

摘要

背景

医疗众筹已成为一种流行策略,用于在保险覆盖范围有限的情况下抵消医疗费用。虽然它常被视为一种民主化且易于获取的金融工具,但越来越多的证据表明其成功程度分布不均,引发了对其在加剧健康不平等方面作用的担忧。

方法

根据PRISMA指南进行了一项系统综述,数据来源于PubMed、CINAHL、Embase、科学网和Scopus。在筛选的1462条记录中,有33项研究符合纳入标准。在PROGRESS框架的指导下,我们提取了关于健康差距社会经济决定因素的数据。采用归纳性内容分析法来确定各研究中如何评估公平性。

结果

我们确定了用于评估医疗众筹公平性的三个关键指标类别:筹资结果、活动可见性和捐赠者参与度。在这些领域中,观察到了显著差异。农村或经济欠发达地区的活动成功率往往较低。种族不平等现象一直存在记录,非白人个体获得的捐赠比白人个体更少且数额更小。性别差异较为复杂,尤其是在与跨性别者相关的活动中。社会经济地位和教育程度与结果显著相关,同时在获取社会资本和构建有说服力的叙述能力方面存在差异。在医疗债务高或保险覆盖范围有限的地区,出现了更多的众筹活动,但总体成功率较低。这些不平等现象受到平台算法和设计特征的影响和强化,这些特征使具有现有优势的用户享有特权。

结论

医疗众筹非但能弥补医疗服务获取差距,反而常常反映并强化了结构性不平等。这些发现挑战了将其描绘为公平融资解决方案的观点,并凸显了政策干预以确保更公平获取医疗资源的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7355/12153085/c4142cb8fd08/12939_2025_2543_Fig1_HTML.jpg

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