Terp Karina, Jakobsson Ulf, Weis Janne, Lundqvist Pia
Department of Health Sciences, Lund University, Lund, Sweden.
Center for Primary Health Care Research, Department of Clinical Sciences (Malmö), Lund University, Lund, Sweden.
Nurs Crit Care. 2025 Jul;30(4):e70086. doi: 10.1111/nicc.70086.
A child's hospitalization in a paediatric intensive care unit is a stressful experience for parents. Measuring parental satisfaction may indicate how parents are affected by the experience. Satisfaction with care is closely connected to the overall quality of care.
The aim was to explore parental satisfaction with paediatric intensive care.
A cross-sectional study design was utilized at two PICUs in Sweden. Inclusion criteria were parents who spoke and understood Swedish and whose child was < 18 years old and hospitalized at the PICU for at least 48 h. Exclusion criteria were parents whose child died during the care period at the PICU. The questionnaire EMPATHIC-30, grounded in the principles of family-centred care, was the basis for the data collection. Descriptive statistics and a non-parametric test (Mann-Whitney U-test) were used to present the data.
A total of 234 questionnaires were distributed, and the response rate was 42.73%. Notably, 100 parents responded to the questionnaire, and 97 were included (mothers n = 50 and fathers n = 47). The parents' mean age was 36.26 years (SD 7.00) and ranged between 23 to 61 years. The results revealed high levels of parental satisfaction with the care provided according to total scale (5.53), domains (5.42-5.77), as well as single items (4.44-5.99). The EMPATHIC-30 scores indicated that parents felt well-informed about their child's condition and received emotional support from health care professionals. Additionally, the study identified areas for improvement, such as the need for enhanced communication, being actively involved in the process of decision-making as well as being involved/prepared before discharge from the PICU.
Parents expressed high satisfaction across the five domains and for the total scale. However, areas for improvement were identified for individual items. Factors that tended to give lower satisfaction were communication between health care professionals and parents, as well as parents' active involvement in decision-making regarding their child's care.
The results of this study emphasize the need for health care organizations to prioritize communication strategies for parents of children cared for at PICUs. By applying a person-centred two-way communication, health care professionals can facilitate open and transparent communication with parents, which can promote parental involvement in care and decision-making.
孩子在儿科重症监护病房住院对父母来说是一段压力巨大的经历。衡量父母的满意度可以表明父母受这段经历影响的程度。对护理的满意度与护理的整体质量密切相关。
本研究旨在探讨父母对儿科重症监护的满意度。
在瑞典的两个儿科重症监护病房采用横断面研究设计。纳入标准为能说并理解瑞典语、孩子年龄小于18岁且在儿科重症监护病房住院至少48小时的父母。排除标准为孩子在儿科重症监护病房护理期间死亡的父母。基于以家庭为中心的护理原则的问卷EMPATHIC - 30是数据收集的基础。采用描述性统计和非参数检验（曼 - 惠特尼U检验）来呈现数据。
共发放234份问卷，回复率为42.73%。值得注意的是，100位父母回复了问卷，97位被纳入研究（母亲50位，父亲47位）。父母的平均年龄为36.26岁（标准差7.00），年龄范围在23至61岁之间。结果显示，根据总评分（5.53）、各领域评分（5.42 - 5.77）以及单个项目评分（4.44 - 5.99），父母对所提供护理的满意度较高。EMPATHIC - 30评分表明，父母对孩子的病情了解充分，并得到了医护人员的情感支持。此外，研究还确定了需要改进的方面，如需要加强沟通、积极参与决策过程以及在从儿科重症监护病房出院前做好准备。
父母在五个领域和总评分方面都表达了较高的满意度。然而，个别项目仍有需要改进的地方。满意度较低的因素包括医护人员与父母之间的沟通以及父母对孩子护理决策的积极参与。
本研究结果强调医疗保健机构需要优先为在儿科重症监护病房接受护理的孩子的父母制定沟通策略。通过采用以人为本的双向沟通，医护人员可以促进与父母进行开放和透明的沟通，这可以促进父母参与护理和决策。
