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本文引用的文献

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Needs of Family Caregivers of People with Lower Limb Amputations: A Scoping Review.下肢截肢患者家庭照顾者的需求:一项范围综述
Behav Sci (Basel). 2024 Apr 15;14(4):326. doi: 10.3390/bs14040326.
2
Interdisciplinary perspectives on digital technologies for global mental health.关于全球精神卫生数字技术的跨学科视角。
PLOS Glob Public Health. 2024 Feb 5;4(2):e0002867. doi: 10.1371/journal.pgph.0002867. eCollection 2024.
3
Past Is Prologue: Dismantling Colonial Legacies to Advance Black Health Equity in the United States.过去即序幕:消除殖民遗产以促进美国黑人的健康公平。
Health Equity. 2023 Dec 12;7(1):831-834. doi: 10.1089/heq.2023.0226. eCollection 2023.
4
Lived experience of children and adolescents with lower-limb loss who used a prosthesis: A qualitative study.下肢截肢儿童和青少年使用假肢的生活体验:一项定性研究。
Prosthet Orthot Int. 2024 Jun 1;48(3):320-328. doi: 10.1097/PXR.0000000000000308. Epub 2023 Nov 29.
5
Diabetes health care specific services readiness and availability in Kenya: Implications for Universal Health Coverage.肯尼亚糖尿病医疗保健特定服务的准备情况与可及性:对全民健康覆盖的影响
PLOS Glob Public Health. 2023 Sep 27;3(9):e0002292. doi: 10.1371/journal.pgph.0002292. eCollection 2023.
6
Barriers and facilitators of receiving prosthetic services in people with lower limb amputation during Covid-19 pandemic: A qualitative study in a developing country.下肢截肢者在新冠疫情期间获得假肢服务的障碍和促进因素:发展中国家的一项定性研究。
Prosthet Orthot Int. 2024 Apr 1;48(2):230-239. doi: 10.1097/PXR.0000000000000256. Epub 2023 Aug 23.
7
Heterogeneity in the guidelines for the management of diabetic foot disease in the Caribbean.加勒比地区糖尿病足病管理指南的异质性。
PLOS Glob Public Health. 2022 May 13;2(5):e0000446. doi: 10.1371/journal.pgph.0000446. eCollection 2022.
8
Global trends in the incidence of hospital admissions for diabetes-related foot disease and amputations: a review of national rates in the 21st century.全球范围内糖尿病相关足部疾病和截肢住院发病率的趋势:21 世纪国家发病率的综述。
Diabetologia. 2023 Feb;66(2):267-287. doi: 10.1007/s00125-022-05845-9. Epub 2022 Dec 13.
9
The Psychosocial Impact of Lower Limb Amputation on Patients and Caregivers.下肢截肢对患者及照顾者的心理社会影响
Cureus. 2022 Nov 8;14(11):e31248. doi: 10.7759/cureus.31248. eCollection 2022 Nov.
10
Global estimates of diabetes-related amputations incidence in 2010-2020: A systematic review and meta-analysis.2010-2020 年全球糖尿病相关截肢发病率的估计:系统评价和荟萃分析。
Diabetes Res Clin Pract. 2023 Jan;195:110194. doi: 10.1016/j.diabres.2022.110194. Epub 2022 Dec 1.

下肢截肢者及其亲属截肢前后的医疗保健经历:特立尼达和多巴哥的案例

Pre- and post-amputation healthcare experiences among persons with lower-limb amputations and their relatives: The case of Trinidad and Tobago.

作者信息

Parey Bephyer, Varachhia Saleem, Enightoola Hannah, Kutscher Elisabeth

机构信息

Sir Arthur Lewis Institute of Social and Economic Studies, The University of the West Indies, St. Augustine, Trinidad and Tobago.

Department of Clinical Surgical Sciences, The University of the West Indies, St. Augustine, Trinidad and Tobago.

出版信息

PLOS Glob Public Health. 2025 Jun 18;5(6):e0004739. doi: 10.1371/journal.pgph.0004739. eCollection 2025.

DOI:10.1371/journal.pgph.0004739
PMID:40531850
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12176142/
Abstract

For persons at risk for and experiencing amputations, accessible and cost-effective healthcare plays an essential role in prevention and rehabilitation. In Trinidad and Tobago, amputations continue to rise, despite the national healthcare system's attention to prevention, making the country a relevant case for providing insights into experiences of amputations within a healthcare system. The study used a basic interpretive, qualitative design with interviews conducted with 17 persons with lower-limb amputations and 17 relatives across Trinidad and Tobago. Thematic analysis revealed five themes related to the experiences of persons with amputations and their relatives within the healthcare system: a) care prior to amputation reflected missed opportunities for prevention; b) hospital circumstances compounded participants' experiences; c) post-amputation services hindered rehabilitation and ability of relatives to provide effective care; d) integrated services could promote wellbeing of persons with amputations and their relatives; and e) advocacy is necessary but complicated. Holistic, multidisciplinary care would benefit persons with amputations and their relatives, ultimately reducing burden on the healthcare system by contributing to improved health outcomes and quality of life. Recommendations regarding public health and rehabilitation, including considerations for culturally competent healthcare, are discussed.

摘要

对于面临截肢风险以及正在经历截肢的人群而言,可及且具成本效益的医疗保健在预防和康复方面发挥着至关重要的作用。在特立尼达和多巴哥,尽管国家医疗保健系统关注预防工作,但截肢人数仍在不断上升,这使得该国成为一个能为洞察医疗保健系统内截肢经历提供相关见解的典型案例。该研究采用了基本的解释性定性设计,对特立尼达和多巴哥的17名下肢截肢者及17名亲属进行了访谈。主题分析揭示了与截肢者及其亲属在医疗保健系统中的经历相关的五个主题:a)截肢前的护理反映出预防机会的错失;b)医院环境加剧了参与者的经历;c)截肢后服务阻碍了康复以及亲属提供有效护理的能力;d)综合服务可促进截肢者及其亲属的福祉;e)倡导虽有必要但情况复杂。全面的多学科护理将使截肢者及其亲属受益,最终通过改善健康结果和生活质量减轻医疗保健系统的负担。文中还讨论了有关公共卫生和康复的建议,包括对具有文化胜任力的医疗保健的考量。