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一项针对心血管疾病和糖尿病患者基于同伴支持的自我管理网站用户体验的定性探索性研究。

A qualitative exploratory study of user experience with a peer-support based, self-management website for people with a cardiovascular condition and diabetes.

作者信息

Wu Chiung-Jung Jo, Poulter Rohan, Atherton John J, MacIsaac Richard J, Leung Tak Yan, Hung Patrick C K, Ramis Mary-Anne

机构信息

School of Health, University of the Sunshine Coast, Petrie, QLD, Australia.

Royal Brisbane and Women's Hospital (RBWH), Queensland, Australia.

出版信息

Digit Health. 2025 Jun 17;11:20552076251350927. doi: 10.1177/20552076251350927. eCollection 2025 Jan-Dec.

Abstract

BACKGROUND

Cardiovascular disease and Type 2 diabetes are two serious chronic health conditions that impact patients, families, and health services. Patients who experience both conditions can struggle to access relevant programmes to guide and educate them on successful self-management. Peer support has been proven to assist patients in managing these dual conditions, but the experience of using an online platform has not been previously explored.

AIM

To understand the experience of using a theory-based, peer-support, self-management website for people with cardiovascular and diabetes conditions in an Australian regional health service.

DESIGN

An exploratory qualitative study was undertaken. Our study is reported according to COREQ guidelines.

METHODS

Data were collected via online, semi-structured interviews approximately one week after participants were asked to engage with the website. Interviews were conducted to focus on the user experience, feasibility and usefulness of accessing the website, and how it helped support development of self-management skills. Interview data were transcribed from audio recordings into text files, thematic analysis was conducted for evolving themes.

RESULTS

Fifteen participants agreed to be interviewed for the study. Findings revealed that participants found the website useful for providing relevant, comprehensive, and reliable online health information to help them manage their comorbidities. Participants appreciated the opportunity to share their experiences with others, and some expressed their interest in becoming peer supporters, to help others who might be trying to manage similar comorbidities.

CONCLUSION

Users' experience of the peer-support, web-based programme was positive overall and supported the physical and emotional well-being of the participants, who were trying to manage two complex chronic health conditions. Considerations for further development are reported on.

摘要

背景

心血管疾病和2型糖尿病是影响患者、家庭及医疗服务的两种严重慢性健康状况。同时患有这两种疾病的患者在获取相关项目以指导和教育他们进行成功自我管理方面可能会遇到困难。同伴支持已被证明有助于患者管理这些并存疾病,但此前尚未探索使用在线平台的体验。

目的

了解澳大利亚地区医疗服务机构中患有心血管疾病和糖尿病的患者使用基于理论的同伴支持自我管理网站的体验。

设计

进行了一项探索性定性研究。我们的研究按照COREQ指南报告。

方法

在要求参与者使用该网站约一周后,通过在线半结构化访谈收集数据。访谈聚焦于用户体验、访问该网站的可行性和有用性,以及它如何帮助支持自我管理技能的发展。访谈数据从录音转录到文本文件中,对不断演变的主题进行了主题分析。

结果

15名参与者同意接受该研究的访谈。研究结果显示,参与者发现该网站有助于提供相关、全面且可靠的在线健康信息,以帮助他们管理并存疾病。参与者赞赏有机会与他人分享自己的经历,一些人表示有兴趣成为同伴支持者,以帮助其他可能正在努力管理类似并存疾病的人。

结论

总体而言,用户对基于网络的同伴支持项目的体验是积极的,该项目支持了试图管理两种复杂慢性健康状况的参与者的身心健康。报告了进一步发展的相关考虑因素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d6dc/12174714/f4a3bb0213e6/10.1177_20552076251350927-fig1.jpg

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