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因胎儿异常而终止妊娠的中国女性的旅程映射:基于社交媒体日记的主题内容分析

Journey Mapping of Chinese Women Undergoing Termination Due to Fetal Abnormalities: A Thematic Content Analysis Based on Social Media Diaries.

作者信息

Da Chaojin, Shi Junfang, Ma Peifen, Wu Chen, Zhang Yuxin, Cui Qiongfang, Wang Miao, Zhang Aili, Xia Haozhi, Cai Tingting

机构信息

School of Nursing and Rehabilitation, Shandong University, Jinan City, Shandong Province, People's Republic of China.

Department of Nursing, School of Clinical Nursing, Gansu Health Vocational College, Lanzhou City, Gansu Province, People's Republic of China.

出版信息

Int J Womens Health. 2025 Jun 17;17:1789-1805. doi: 10.2147/IJWH.S509259. eCollection 2025.

Abstract

PURPOSE

The psychological consequences of pregnancy termination due to fetal abnormalities demonstrate stage-specific characteristics among affected women. With the development of the Internet, social media has increasingly become a significant channel for documenting and sharing health-related experiences. Utilizing journey mapping, this study systematically analyzes self-documented online diaries to explore the experiences of women undergoing induced abortions due to fetal abnormalities across different phases.

PATIENTS AND METHODS

We manually searched three mainstream Chinese text-based social media platforms-Douban, Zhihu, and Jianshu-to collect abortion diaries from user homepages. An interpretative phenomenological thematic content analysis was used to develop journey maps.

RESULTS

A total of 278 diaries from 35 users were analyzed, focusing on the experiences of women undergoing pregnancy termination due to fetal abnormalities, which were divided into four phases: diagnostic, inpatient abortion, puerperium, and post-puerperium. Three main themes emerged in each phase: psychological experiences, coping strategies, and post-traumatic transformation. Ten subthemes were identified: grief, emotional responses, self-blame and guilt, cognitive adjustment, seeking social support, recovery, growth, avoidance behaviors, emotional regulation, and shifting attention. Avoidance behaviors occurred in all phases except the puerperium, emotional regulation was present only during inpatient abortion, and shifting attention appeared solely in the puerperium. The remaining subthemes were present across all phases, with varying frequency.

CONCLUSION

Women's psychological experiences, coping strategies, and post-traumatic transformations vary across stages, highlighting the need for personalized and adaptive nursing care.

摘要

目的

因胎儿异常而终止妊娠的心理后果在受影响女性中表现出特定阶段的特征。随着互联网的发展,社交媒体越来越成为记录和分享健康相关经历的重要渠道。本研究利用旅程地图法,系统分析自我记录的网络日记,以探索因胎儿异常而接受人工流产的女性在不同阶段的经历。

患者与方法

我们手动搜索了三个主流的中文文本社交媒体平台——豆瓣、知乎和简书——从用户主页收集流产日记。采用解释性现象学主题内容分析法绘制旅程地图。

结果

共分析了来自35名用户的278篇日记,重点关注因胎儿异常而终止妊娠的女性的经历,这些经历分为四个阶段:诊断期、住院流产期、产褥期和产后恢复期。每个阶段出现了三个主要主题:心理体验、应对策略和创伤后转变。确定了十个子主题:悲伤、情绪反应、自责与内疚、认知调整、寻求社会支持、恢复、成长、回避行为、情绪调节和注意力转移。回避行为出现在除产褥期之外的所有阶段,情绪调节仅在住院流产期间出现,注意力转移仅出现在产褥期。其余子主题在所有阶段均有出现,频率各不相同。

结论

女性的心理体验、应对策略和创伤后转变在不同阶段有所不同,这凸显了个性化和适应性护理的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66aa/12183337/b7d3c7e2e2cd/IJWH-17-1789-g0001.jpg

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