Afacan Güler Seray, Partlak Günüşen Neslihan, Serçe Yüksel Özgü, Kizmazoğlu Deniz
Department of Psychiatric Nursing, Institute of Health Sciences, Dokuz Eylul University, Izmir, Turkey.
Faculty of Nursing, Psychiatric Nursing Department, Dokuz Eylul University, Izmir, Turkey.
J Pediatr Hematol Oncol Nurs. 2025 May-Jun;42(3):100-108. doi: 10.1177/27527530251336209. Epub 2025 Jun 30.
BackgroundThe purpose of this study was to investigate the experiences and needs of Turkish fathers with children undergoing cancer treatment.MethodThis descriptive qualitative study was conducted in a university hospital in Türkiye. The sample of the study consisted of 23 fathers of children with cancer selected with purposive sampling. Semistructured interviews were analyzed by using the thematic analysis method.ResultsFour themes emerged from these data. These themes were emotional experiences, changes, role of social support in coping, and support needs. Fathers experienced fear of death, helplessness, uncertainty, loneliness, and hope. They assumed the role of caregiver in addition to the role of father, spouse, and employee. Their family relationships improved for the sick child and spouse but did not for siblings. It was found that fathers hid their feelings from their families to look strong. Moreover, they had information needs at the beginning and ongoing housing and financial needs. Fathers needed psychological support, and they did not know how to access psychological support services.DiscussionFathers whose children have cancer experience many emotional difficulties and changes. They have difficulty in expressing their feelings and getting help. Nurses may encourage fathers to express their feelings, recognize their changing roles, relationships, and needs, and provide psychosocial support based on holistic care to help them cope with emotional burdens.
背景
本研究的目的是调查土耳其父亲陪伴患癌子女接受治疗期间的经历和需求。
方法
本描述性定性研究在土耳其的一家大学医院开展。研究样本由通过目的抽样选取的23位患癌儿童的父亲组成。采用主题分析法对半结构式访谈进行分析。
结果
这些数据产生了四个主题。这些主题分别是情感体验、变化、社会支持在应对中的作用以及支持需求。父亲们经历了对死亡的恐惧、无助、不确定、孤独和希望。他们除了承担父亲、配偶和员工的角色外,还承担了照顾者的角色。他们与患病孩子和配偶的家庭关系得到改善,但与兄弟姐妹的关系没有改善。研究发现,父亲们为了显得坚强而向家人隐瞒自己的感受。此外,他们一开始有信息需求,并且持续存在住房和经济需求。父亲们需要心理支持,且不知道如何获得心理支持服务。
讨论
孩子患癌的父亲会经历许多情感困难和变化。他们在表达自己的感受和获得帮助方面存在困难。护士可以鼓励父亲们表达自己的感受,认识到他们不断变化的角色、关系和需求,并基于整体护理提供心理社会支持,以帮助他们应对情感负担。