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自闭症成年人的掩饰、社会环境与感知压力:一项生态瞬时评估研究。

Masking, social context and perceived stress in autistic adults: An ecological momentary assessment study.

作者信息

Scheeren Anke M, Nieuwenhuis Smiddy, Crane Laura, Roke Yvette, Begeer Sander

机构信息

Vrije Universiteit Amsterdam, The Netherlands.

Amsterdam Public Health Research Institute, The Netherlands.

出版信息

Autism. 2025 Jul 9:13623613251353358. doi: 10.1177/13623613251353358.

Abstract

Masking may entail the suppression of autistic traits by autistic individuals. Thus far, research indicates a negative impact of autistic masking on mental health, but this is largely based on retrospective surveys. In this study, we used ecological momentary assessment to examine real-time associations between social context (i.e. presence of (non-)autistic others), masking, and perceived stress in everyday life among a sample of autistic adults. Ecological momentary assessment data were collected via a smartphone application for 87 autistic individuals (58 females; age = 48; age range: 17-68). In line with the hypotheses, repeated measures analyses of variance and linear mixed models indicated that (1) participants reported masking significantly less when they were alone compared with when others were present, (2) participants masked significantly more when non-autistic others were present compared with autistic others, and (3) more masking was associated with a concurrent higher level of perceived stress. Autistic adults reported they could be more themselves among autistic peers and reduced masking was associated with reduced stress. These ecological momentary assessment study findings provide ecological validity to the potential stressful impact of masking in the daily lives of autistic adults.Lay abstractAutistic people may try to hide their autistic traits in order to fit in. This is called autistic masking. Survey research suggests that autistic masking may have a negative effect on the mental well-being of autistic people. Yet, survey research has limitations, because people may not remember or may not accurately report how much they masked and how they felt in the past. Therefore, in this study, we asked autistic adults to use a smartphone app to report with whom they were (with or without autistic people), if they could be themselves (degree of masking), and how stressed they felt during the past 4 h. Participants reported this information multiple times over a period of 28 days. In total, 87 autistic adults participated (58 females; age range: 17-68). In line with our expectations, (1) participants masked less when they were alone compared with when others were present, (2) participants masked more when non-autistic others were present compared with autistic others, and (3) more masking was linked with the experience of more stress in the same moment. Autistic adults reported they could be more themselves among other autistic individuals. Also, less masking was associated with less stress. Our study shows the everyday reality of stress during masking experienced by autistic adults.

摘要

掩饰可能涉及自闭症患者对自身自闭症特征的抑制。到目前为止,研究表明自闭症掩饰对心理健康有负面影响,但这在很大程度上基于回顾性调查。在本研究中,我们使用生态瞬时评估来考察社交情境(即(非)自闭症他人的在场情况)、掩饰与自闭症成年人样本在日常生活中感知到的压力之间的实时关联。通过一款智能手机应用程序收集了87名自闭症个体(58名女性;年龄 = 48岁;年龄范围:17 - 68岁)的生态瞬时评估数据。与假设一致,重复测量方差分析和线性混合模型表明:(1)与他人在场时相比,参与者独自时报告的掩饰行为显著减少;(2)与自闭症他人在场时相比,非自闭症他人在场时参与者的掩饰行为显著增多;(3)更多的掩饰行为与同时更高水平的感知压力相关。自闭症成年人报告称,在自闭症同伴中他们可以更展现真实的自己,减少掩饰与减轻压力相关。这些生态瞬时评估研究结果为自闭症成年人日常生活中掩饰行为可能带来的压力影响提供了生态效度。

摘要

自闭症患者可能会试图隐藏自己的自闭症特征以便融入。这被称为自闭症掩饰。调查研究表明,自闭症掩饰可能会对自闭症患者的心理健康产生负面影响。然而,调查研究存在局限性,因为人们可能不记得或无法准确报告他们过去掩饰的程度以及感受。因此,在本研究中,我们要求自闭症成年人使用一款智能手机应用程序来报告他们与谁在一起(有无自闭症患者)、他们是否能够展现真实的自己(掩饰程度)以及在过去4小时内他们感受到的压力程度。参与者在28天的时间里多次报告这些信息。共有87名自闭症成年人参与(58名女性;年龄范围:17 - 68岁)。与我们的预期一致:(1)与他人在场时相比,参与者独自时的掩饰行为更少;(2)与自闭症他人在场时相比,非自闭症他人在场时参与者的掩饰行为更多;(3)更多的掩饰行为与同一时刻更多的压力体验相关。自闭症成年人报告称,在其他自闭症个体中他们可以更展现真实的自己。此外,更少的掩饰行为与更少的压力相关。我们的研究揭示了自闭症成年人在掩饰过程中所经历的日常压力现实。

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