脊髓性肌萎缩症患者的康复管理：综述
Rehabilitation management for patients with spinal muscular atrophy: a review.
作者信息
Song Wei, Ke Xiaohua
机构信息
Department of Rehabilitation Medicine, Shanghai Fourth People's Hospital, School of Medicine, Tongji University, Shanghai, China.
出版信息
Orphanet J Rare Dis. 2025 Jul 10;20(1):352. doi: 10.1186/s13023-025-03888-w.
The rehabilitation management of patients with spinal muscular atrophy is a complex, multidisciplinary process aimed at slowing disease progression, preventing complications, and enhancing patients' quality of life. Key components include motor function management, respiratory function support, swallowing function management, posture alignment, and the use of assistive devices. The various types of spinal muscular atrophy differ significantly in symptoms, progression rates, and severity, which poses unique challenges in rehabilitation management.
脊髓性肌萎缩症患者的康复管理是一个复杂的多学科过程，旨在减缓疾病进展、预防并发症并提高患者的生活质量。关键组成部分包括运动功能管理、呼吸功能支持、吞咽功能管理、姿势矫正以及辅助设备的使用。不同类型的脊髓性肌萎缩症在症状、进展速度和严重程度上有显著差异，这给康复管理带来了独特的挑战。
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