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成人自闭症谱系障碍:关于促进和维持生活质量策略的综合综述。

Autism Spectrum Disorder in adults: an integrative review about strategies for promotion and maintenance of quality of life.

作者信息

Laguna Gabriela Garcia de Carvalho, Rodrigues Isadora Bagues, Neves Sara Emanuelle Dos Santos, Libarino David Santos, Maciel Fernanda Beatriz Melo, Pessoa Antônio Gonçalves, Santos Leticia Defensor da Silva, Prado Nilia Maria de Brito Lima

机构信息

Instituto Multidisciplinar em Saúde, Universidade Federal da Bahia (UFBA), Vitória da Conquista (BA), Brazil.

出版信息

Sao Paulo Med J. 2025 Jul 11;143(5):e2024324. doi: 10.1590/1516-3180.2024.0324.R1.14042025. eCollection 2025.

Abstract

BACKGROUND

People with Autism Spectrum Disorder (ASD) experience phases of life beyond childhood, which increase the difficulties inherent in each cycle. In contrast, the scientific literature lacks broad reviews of developmental strategies regarding quality of life, even though ASD encompasses changes in social, communicative, and behavioral skills.

OBJECTIVE

This study aimed to identify strategies for promoting and maintaining quality of life among adults diagnosed with autism.

DESIGN AND SETTING

This integrative review was conducted in Brazil.

METHODS

This review searched the Scopus and Web of Science databases, from strategies that combined the descriptors ("Autism Spectrum Disorder"), ("Autism"), ("Aging"), and ("Quality of life"). Original studies with the full text available in English published between 2018 and 2023 were included, if they responded to the eligibility criteria.

RESULTS

In total, 3,098 studies were identified, of which 44 were selected to compose the bibliographic sample of this review. The population sample included 184,653 participants diagnosed with ASD, aged on average 43.5 years old. The following were described for adults with autism: 1) cognitive aspects, 2) aspects related to suffering/mental illness, and 3) strategies to promote quality of life.

CONCLUSION

This research contributes to basic clinical practice and promotes responsible care that attends to the health needs of people with autism throughout life. Early interventions in autistic adults and the availability of support throughout life are essential for maintaining cognitive health and quality of life.

摘要

背景

自闭症谱系障碍(ASD)患者会经历童年之后的人生阶段,这增加了每个阶段所固有的困难。相比之下,尽管ASD涉及社交、沟通和行为技能的变化,但科学文献中缺乏关于生活质量发展策略的广泛综述。

目的

本研究旨在确定促进和维持自闭症成年患者生活质量的策略。

设计与地点

本综合综述在巴西进行。

方法

本综述在Scopus和科学网数据库中检索,检索词组合为(“自闭症谱系障碍”)、(“自闭症”)、(“衰老”)和(“生活质量”)。纳入2018年至2023年期间发表的、全文为英文且符合纳入标准的原创研究。

结果

共识别出3098项研究,其中44项被选入本综述的文献样本。总体样本包括184,653名被诊断为ASD的参与者,平均年龄为43.5岁。针对自闭症成年患者描述了以下内容:1)认知方面;2)与痛苦/精神疾病相关的方面;3)促进生活质量的策略。

结论

本研究有助于基础临床实践,并促进提供负责任的护理,关注自闭症患者一生的健康需求。对自闭症成年人进行早期干预以及一生都能获得支持对于维持认知健康和生活质量至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5a37/12258820/607df954a24e/1806-9460-spmj-143-05-e2024324-gf01.jpg

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