Olsbø Signe, Larsen Marie Hamilton, Kiserud Sara George, Hagen Trine Sæther, Hermansen Åsmund, Bjørnland Kristin
Department of Gastrointestinal and Pediatric Surgery, Oslo University Hospital, Rikshospitalet, Postboks 4950 Nydalen, 0424, Oslo, Norway.
Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
Pediatr Surg Int. 2025 Jul 16;41(1):214. doi: 10.1007/s00383-025-06096-6.
Explore health literacy (HL) among parents of children with anorectal malformation (ARM) and identify the predictors of HL.
Parents of children < 16 years treated for ARM were invited to complete the Health Literacy Questionnaire-Parent (HLQ-p), General Self-efficacy Scale (GSES), electronic Health Literacy-Scale (eHEALS) and a study-specific questionnaire. Demographic data were collected. Ethical approval was obtained.
137 parents (40% fathers) of 105 children (median age 7.1 years) participated. The highest HL scores were in managing the child's health and engaging with healthcare providers, while scores were lowest in social support, information sufficiency, and interpreting health information. Higher HL correlated with increasing parental age and education. Parents not speaking the native language at home or not living with the child's other parent had lower HL scores. More challenges were observed among parents of female children and children with comorbidities. Parents had high eHEALS scores (mean 3.7, SD 0.6, max score 5), while 48% had low self-efficacy scores (max score 4).
Many parents experience a lack of information, insufficient social support, and difficulty interpreting information. Predictors of HL challenges include having a female child, a child with comorbidity, younger parental age, lower education, and low self-efficacy. These parents will likely benefit from targeted support.
探究肛门直肠畸形（ARM）患儿家长的健康素养（HL），并确定健康素养的预测因素。
邀请接受ARM治疗的16岁以下患儿的家长完成《健康素养问卷-家长版》（HLQ-p）、一般自我效能感量表（GSES）、电子健康素养量表（eHEALS）以及一份特定研究问卷。收集人口统计学数据。获得了伦理批准。
105名患儿（中位年龄7.1岁）的137名家长（40%为父亲）参与了研究。在管理孩子的健康和与医疗服务提供者互动方面，健康素养得分最高，而在社会支持、信息充足性和解读健康信息方面得分最低。较高的健康素养与家长年龄和教育程度的增加相关。在家不说母语或未与孩子的另一方家长同住的家长健康素养得分较低。在女童家长和患有合并症的患儿家长中观察到更多挑战。家长的电子健康素养量表得分较高（平均3.7，标准差0.6，最高分5），而48%的家长自我效能感得分较低（最高分4）。
许多家长存在信息不足、社会支持不够以及解读信息困难的问题。健康素养挑战的预测因素包括有女童、患有合并症的患儿、家长年龄较小、教育程度较低以及自我效能感较低。这些家长可能会从有针对性的支持中受益。
