Hackenberger Paige N, Hascher Kevin, Owens Reese, Witt Andrew, Barnard Cynthia, Glover Deja R, Nelson Paul, Holtz Jenni, Lenz Bess, Jordan Sumanas W, Beach Lauren B
Institute for Sexual and Gender Minority Health and Wellbeing, Northwestern University Feinberg School of Medicine, Chicago, IL, United States.
Division of Plastic Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, United States.
J Natl Cancer Inst Monogr. 2025 Jul 1;2025(69):161-169. doi: 10.1093/jncimonographs/lgaf005.
To achieve a paradigm shift in the rigor of sexual and gender minority cancer studies, health systems must integrate sex assigned at birth, sexual orientation, and gender identity (SSOGI) measures into electronic medical records (EMRs) and scale up SSOGI data collection in oncology settings. The SSOGI Collect project sought to identify barriers and facilitators for SSOGI data collection and design a tailored intervention to inform and encourage oncology staff to increase collection in a culturally sensitive manner.
We employed mixed methods, including qualitative interviews with oncology staff, live training sessions on SSOGI data collection, and monitoring of SSOGI documentation rates in the EMR.
Fifteen semistructured interviews with oncology staff were conducted. Forty live training sessions were delivered to health system personnel on SSOGI data collection. After trainings, SSOGI documentation rates increased in both targeted oncology clinics and across the health system as a whole.
The SSOGI Collect project demonstrated that live training sessions are an effective strategy for improving SSOGI data collection in oncology settings. This initiative aligned with an unexpected, broader health system effort to enhance SSOGI data collection in response to new state legislation. This study highlights the importance of tailored interventions for integrating SSOGI data into EMRs, which led to improved data completeness and documentation across oncology clinics and the wider health system.
为了在性少数群体和性别少数群体癌症研究的严谨性方面实现范式转变，医疗系统必须将出生时指定的性别、性取向和性别认同（SSOGI）指标纳入电子病历（EMR），并在肿瘤学环境中扩大SSOGI数据收集。SSOGI收集项目旨在确定SSOGI数据收集的障碍和促进因素，并设计一种量身定制的干预措施，以告知和鼓励肿瘤学工作人员以文化敏感的方式增加数据收集。
我们采用了混合方法，包括对肿瘤学工作人员进行定性访谈、关于SSOGI数据收集的现场培训课程，以及监测电子病历中SSOGI的记录率。
对肿瘤学工作人员进行了15次半结构化访谈。为医疗系统人员举办了40次关于SSOGI数据收集的现场培训课程。培训后，目标肿瘤诊所和整个医疗系统的SSOGI记录率均有所提高。
SSOGI收集项目表明，现场培训课程是提高肿瘤学环境中SSOGI数据收集的有效策略。这一举措与医疗系统为响应新的州立法而加强SSOGI数据收集的一项意外的、更广泛的努力相一致。本研究强调了量身定制的干预措施对于将SSOGI数据整合到电子病历中的重要性，这导致了肿瘤诊所和更广泛的医疗系统中数据完整性和记录的改善。
