Amici Jean-Michel, Lévy Pierre, Caillet Gregory, Touboul Chantal, Joubert Jean-Michel, Dréno Brigitte
Department of Dermatology, CHU Bordeaux University Hospital, Saint-André Hospital, Bordeaux, France.
Paris-Dauphine University, PSL University, LEDA[LEGOS], Paris, France.
Acta Derm Venereol. 2025 Jul 19;105:adv43351. doi: 10.2340/actadv.v105.43351.
This study was undertaken to evaluate disease awareness, attitudes, and expectations in people with actinic keratosis (AK) in France. A total of 639 participants aged ≥ 40 years reporting AK lesions diagnosed by a physician were recruited from a representative general population panel. Data were collected on disease awareness, care experience, sun protection behaviour,, and treatment expectations. The proportion of participants endorsing correct statements about AK rarely exceeded 50%. Only 332 participants (52.0%) reported that they knew much about treatments and 134 (21.0%) never felt the need to request information; 545 participants (85.3%) reported that waiting times to see dermatologists were excessive; 160 treated participants (40.8%) reported lesion persistence after treatment; and 140 (35.3%) that certain treatments made their skin painful or unsightly. Sun protection was sub-optimal, with 145 participants (22.7%) rarely or never going out in the sun with protection and 334 (52.3%) rarely or never putting on sunscreen in the morning. The most frequently desired improvements to care were "Treatments that make lesions disappear" (n = 528; 82.6%), "Treatments that are easy to use" (n = 524; 82.0%) and "Physicians to propose regular skin examinations" (n = 510; 79.8%). In conclusion, better information and education for AK patients are needed, as well as more acceptable topical treatments.
本研究旨在评估法国光化性角化病（AK）患者对疾病的认知、态度和期望。从具有代表性的普通人群样本中招募了639名年龄≥40岁且有医生诊断的AK皮损的参与者。收集了有关疾病认知、护理经历、防晒行为和治疗期望的数据。认可关于AK正确陈述的参与者比例很少超过50%。只有332名参与者（52.0%）表示他们对治疗了解很多，134名（21.0%）从未觉得有必要询问信息；545名参与者（85.3%）表示看皮肤科医生的等待时间过长；160名接受治疗的参与者（40.8%）表示治疗后皮损持续存在；140名（35.3%）表示某些治疗使他们的皮肤疼痛或难看。防晒情况不理想，145名参与者（22.7%）很少或从不采取防护措施外出晒太阳，334名（52.3%）很少或从不在早上涂抹防晒霜。最常希望改善的护理方面是“使皮损消失的治疗”（n = 528；82.6%）、“易于使用的治疗”（n = 524；82.0%）和“医生建议定期进行皮肤检查”（n = 510；79.8%）。总之，需要为AK患者提供更好的信息和教育，以及更可接受的局部治疗。
