Hajar Safi Mashal, Smith Paula, Meyer Johanna, Daniels Jo
University of Bath, UK.
North Bristol NHS Trust, UK.
Health Psychol Open. 2025 Jul 17;12:20551029251355350. doi: 10.1177/20551029251355350. eCollection 2025 Jan-Dec.
Raynaud's Phenomenon is a condition characterised by vasoconstriction of the extremities and can have a detrimental impact on people's lives. The treatment options for patients currently offered through healthcare services, e.g., in the United Kingdom (UK), are insufficient. This study provides a theoretical basis for future interventions by presenting insights into experiences of living with Raynaud's. Using an inductive-deductive approach, our thematic analysis of 19 semi-structured interviews with people living with Raynaud's in the UK was informed by the common-sense model of self-regulation. Three interrelated themes were generated to capture the illness experiences of people with Raynaud's: 1) Illness representations, 2) Coping response, and 3) Advice and guidance. Together, these themes provide insight into illness perceptions, coping styles and factors that may contribute to adherence to self-management. The findings suggest that a stepped care approach to managing Raynaud's may be beneficial.
雷诺现象是一种以四肢血管收缩为特征的病症，会对人们的生活产生不利影响。目前通过医疗服务（例如在英国）为患者提供的治疗选择并不充分。本研究通过展示对雷诺现象患者生活经历的见解，为未来的干预措施提供了理论基础。采用归纳 - 演绎方法，我们以自我调节的常识模型为依据，对19名英国雷诺现象患者进行的半结构化访谈进行主题分析。生成了三个相互关联的主题来描述雷诺现象患者的疾病经历：1）疾病表征，2）应对反应，以及3）建议与指导。这些主题共同为疾病认知、应对方式以及可能有助于坚持自我管理的因素提供了见解。研究结果表明，采用分级护理方法来管理雷诺现象可能是有益的。
