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家庭生活质量在接受日常生活技能治疗的自闭症青少年照顾者中的作用。

The role of family quality of life in the caregivers of autistic adolescents receiving treatment for daily living skills.

作者信息

Duncan Amie, Tadevich Lauren

机构信息

Cincinnati Children's Hospital Medical Center, Department of Pediatrics, Cincinnati, OH, USA.

Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.

出版信息

Res Autism. 2025 Sep;127. doi: 10.1016/j.reia.2025.202660. Epub 2025 Jul 11.

Abstract

Adolescence may be a particularly challenging time for autistic teens and their caregivers. Thus, the current study sought to better understand Family Quality of Life (FQOL) in this population. Further, given the impact that daily living skills (DLS) have on the family system, the current study examined whether a DLS intervention impacted FQOL. Fifty-eight adolescents with autism and their caregivers completed the Surviving and Thriving in the Real World (STRW) intervention and caregivers reported on their FQOL using the (FQOL Scale). Results revealed that caregivers who participated in the STRW intervention endorsed significant positive changes on the Family Interaction ( = .02) and Parenting ( = .03) subscales and Overall FQOL ( = .02) from baseline to post-treatment. Further, higher Emotional Well-Being at baseline was the only FQOL variable that was related to increased changes in DLS from baseline to post-treatment (r = .29, = 03). Results suggest that completion of the STRW intervention relates to significant positive changes in FQOL. Further, results suggest that targeting aspects of FQOL, such as emotional well-being, may lead to improved treatment gains in autistic teens.

摘要

对于患有自闭症的青少年及其照顾者来说,青春期可能是一个特别具有挑战性的时期。因此,本研究旨在更好地了解这一人群的家庭生活质量(FQOL)。此外,鉴于日常生活技能(DLS)对家庭系统的影响,本研究考察了DLS干预是否会影响FQOL。58名患有自闭症的青少年及其照顾者完成了“在现实世界中生存与发展”(STRW)干预,照顾者使用(FQOL量表)报告了他们的FQOL。结果显示,参与STRW干预的照顾者在家庭互动(=0.02)、育儿(=0.03)子量表以及从基线到治疗后的总体FQOL(=0.02)方面都认可了显著的积极变化。此外,基线时较高的情绪幸福感是唯一与从基线到治疗后DLS的变化增加相关的FQOL变量(r = 0.29,= 0.03)。结果表明,完成STRW干预与FQOL的显著积极变化有关。此外,结果表明,针对FQOL的各个方面,如情绪幸福感,可能会在患有自闭症的青少年中带来更好的治疗效果。

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