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对患有痴呆症的社区居家老年人及其家庭照顾者而言“重要之事”:一项定性先导研究

"What Matters" to Community-Dwelling Older Adults With Dementia and Their Family Caregivers: A Qualitative Pilot Study.

作者信息

Tzeng Huey-Ming, Kuo Yong-Fang, Pappadis Monique R, Hennessy Elizabeth A, Marquez-Bhojani Maribel M, David Samuel V, Harrell Demetress, Raji Mukaila A

机构信息

The University of Texas Medical Branch, Galveston, TX, USA.

Hospice in the Pines, Lufkin, TX, USA.

出版信息

Sage Open Aging. 2025 Jul 23;11:30495334251358620. doi: 10.1177/30495334251358620. eCollection 2025 Jan-Dec.

DOI:10.1177/30495334251358620
PMID:40718540
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12290350/
Abstract

Drawing on the Institute of Healthcare Improvement (IHI)'s 4Ms framework of an Age-Friendly Health System in primary care to incorporate "What Matters," mentation, mobility, and medication, this qualitative/interview pilot study listened to "What Matters" most to community-dwelling Medicare beneficiaries with dementia and family caregivers in the context of Annual Wellness Visit (AWV). We then mapped identified "What Matters" themes (health goals and worries) to IHI-4Ms. Twenty-four caregivers and two patients participated in a one-time phone/Zoom interview. We observed three overarching goal themes (physical/mental health maintenance, cognitive maintenance, and independence) and six overarching worry themes (cognitive decline, behavioral changes, health decline leading to loss of independence, mobility issues, dehydration, and caregivers' financial responsibility). The identified goals and worries were mapped to at least one of IHI-4Ms components, indicating the potential for addressing these through AWVs. Our study is the first to understand "What Matters" to Medicare beneficiaries with MCI/ADRD in the context of AWVs and to map the identified health goals and worries to IHI-4Ms. The valuable lessons learned in this pilot study underscore the potential need for practical health policy considerations to support dementia-friendly AWVs so that "What Matters" to patients with MCI/ADRD and caregivers can be heard/discussed during AWVs.

摘要

借鉴医疗保健改善研究所(IHI)在初级保健中构建的适老化健康系统的4Ms框架,该框架包含“重要事项”、认知、活动能力和药物治疗,这项定性/访谈试点研究在年度健康检查(AWV)背景下,聆听了患有痴呆症的社区医保受益人和家庭护理人员认为“最重要的事项”。然后,我们将确定的“重要事项”主题(健康目标和担忧)与IHI的4Ms框架进行了映射。24名护理人员和2名患者参与了一次性的电话/Zoom访谈。我们观察到三个总体目标主题(身体/心理健康维持、认知维持和独立性)和六个总体担忧主题(认知能力下降、行为改变、健康状况下降导致失去独立性、活动能力问题、脱水以及护理人员的经济责任)。所确定的目标和担忧被映射到了IHI-4Ms框架的至少一个组成部分,这表明通过年度健康检查来解决这些问题具有潜力。我们的研究首次在年度健康检查背景下,了解患有轻度认知障碍/晚期痴呆相关疾病(MCI/ADRD)的医保受益人的“重要事项”,并将所确定的健康目标和担忧与IHI-4Ms框架进行映射。在这项试点研究中汲取的宝贵经验凸显了在制定实际健康政策时,可能需要考虑支持对痴呆症友好的年度健康检查,以便在年度健康检查期间能够倾听/讨论对患有MCI/ADRD的患者及其护理人员而言“重要的事项”。

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本文引用的文献

1
Annual Wellness Visits and Early Dementia Diagnosis Among Medicare Beneficiaries.医疗保险受益人的年度健康访视和早期痴呆诊断。
JAMA Netw Open. 2024 Oct 1;7(10):e2437247. doi: 10.1001/jamanetworkopen.2024.37247.
2
Assessing What Matters to People Affected by Alzheimer's Disease: A Quantitative Analysis.评估对阿尔茨海默病患者重要的事项:一项定量分析。
Neurol Ther. 2023 Apr;12(2):505-527. doi: 10.1007/s40120-023-00445-0. Epub 2023 Feb 10.
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Association between medicare annual wellness visits and prevention of falls and fractures in older adults in Texas, USA.美国德克萨斯州医疗保险年度健康访视与老年人跌倒和骨折预防的关联
Prev Med. 2022 Nov;164:107331. doi: 10.1016/j.ypmed.2022.107331. Epub 2022 Nov 9.
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Getting patients ready for "in the moment" decisions.让患者为“当下”的决策做好准备。
J Am Geriatr Soc. 2022 Sep;70(9):2474-2477. doi: 10.1111/jgs.17935. Epub 2022 Jul 4.
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Characteristics Associated With Mexican-American Hospice Use: Retrospective Cohort Study Using the Hispanic Established Population for the Epidemiologic Study of the Elderly (H-EPESE).与墨西哥裔美国人使用临终关怀相关的特征:使用西班牙裔老年人流行病学研究(H-EPESE)建立的人口进行回顾性队列研究。
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Documentation of Dementia as a Cause of Death Among Mexican-American Decedents Diagnosed with Dementia.记录墨西哥裔美国人死者中因痴呆而死亡的情况。
J Alzheimers Dis. 2021;82(4):1727-1736. doi: 10.3233/JAD-210361.
7
Conversations about wellness: A qualitative analysis of patient narratives post annual wellness visit.关于健康的对话:年度健康访视后患者叙述的定性分析。
Geriatr Nurs. 2021 May-Jun;42(3):681-686. doi: 10.1016/j.gerinurse.2021.03.001. Epub 2021 Apr 5.
8
Mobility and Self-Care are Associated With Discharge to Community After Home Health for People With Dementia.在为痴呆症患者提供家庭健康护理后,其活动能力和自理能力与出院到社区相关。
J Am Med Dir Assoc. 2021 Jul;22(7):1493-1499.e1. doi: 10.1016/j.jamda.2020.12.014. Epub 2021 Jan 19.
9
Practical recommendations for timely, accurate diagnosis of symptomatic Alzheimer's disease (MCI and dementia) in primary care: a review and synthesis.实用建议以实现及时、准确诊断症状性阿尔茨海默病(MCI 和痴呆):综述与综合。
J Intern Med. 2021 Aug;290(2):310-334. doi: 10.1111/joim.13244. Epub 2021 Mar 31.
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Characteristics Associated with Feeding Tube Placement: Retrospective Cohort Study of Texas Nursing Home Residents with Advanced Dementia.与置管饲管相关的特征:德克萨斯州养老院患有晚期痴呆症居民的回顾性队列研究。
J Am Med Dir Assoc. 2021 Jul;22(7):1471-1476.e4. doi: 10.1016/j.jamda.2020.10.033. Epub 2020 Nov 22.