Araghi Marzieh, Sahota Arron, Czachorowski Maciej, Naicker Kevin, Bohm Natalie, Phillipps Katie, Gaddum James, Cook Erica Jane
Pfizer Ltd, Walton Oaks, Dorking Rd, Surrey, KT20 7NS, United Kingdom, 44 7305408118.
Ipsos, 3 Thomas More Square, London, United Kingdom.
JMIR Form Res. 2025 Jul 30;9:e63997. doi: 10.2196/63997.
Social media listening can be leveraged to obtain authentic perceptions about events, their impact, guidelines, and policies. There has been to date no research that has examined the experiences of patients with COVID-19 from diagnosis to treatment using social media listening in the United Kingdom.
This study aimed to assess public perceptions, insights, and sentiments throughout the patient journey from diagnosis to treatment during the COVID-19 pandemic.
A comprehensive search query was designed to retrieve social media data that referred to COVID-19 and treatment. The search was conducted using the social media monitoring tool, Synthesio (Ipsos). Data were retrospectively collected for the period covering September 2019 to September 2022 from Twitter (subsequently rebranded X), Facebook, Instagram, and YouTube as well as 126 public forums (including Health Unlocked, Mums Net, The Student Room, and Patient Forums UK). Available data in the United Kingdom expressed in the English language were collected and filtered, generating a final dataset consisting of 31,319 posts from an overall initial dataset of 706,634 posts. Complimentary Google trend analyses of search terms mentioning COVID-19 treatments were also performed.
Social media posts related to COVID-19 symptoms accounted for 6% of overall posts, compared to 35% of posts related to testing, 25% of posts related to diagnosis, and 32% of posts related to treatment. Overall, the trend observed from social media posts relating to COVID-19 treatment extracted in Synthesio was largely congruent with the trend of COVID-19 searches on Google, indicating a potential relationship between public discourse and social media and internet search behavior.
The findings from this study have the potential to inform decision-making regarding public health interventions, communication strategies, and health care policies in the United Kingdom during future public health emergencies.
社交媒体倾听可用于获取关于事件、其影响、指南和政策的真实看法。迄今为止，在英国尚未有研究使用社交媒体倾听来考察新冠肺炎患者从诊断到治疗的经历。
本研究旨在评估在新冠肺炎大流行期间，患者从诊断到治疗的整个过程中的公众看法、见解和情绪。
设计了一个全面的搜索查询，以检索提及新冠肺炎和治疗的社交媒体数据。使用社交媒体监测工具Synthesio（益普索）进行搜索。回顾性收集了2019年9月至2022年9月期间来自推特（后更名为X）、脸书、照片墙和优兔以及126个公共论坛（包括“健康解锁”、“妈妈网”、“学生天地”和“英国患者论坛”）的数据。收集并筛选了英国以英语表达的可用数据，从总共706,634条帖子的初始数据集中生成了一个最终数据集，其中包含31,319条帖子。还对提及新冠肺炎治疗的搜索词进行了补充谷歌趋势分析。
与新冠肺炎症状相关的社交媒体帖子占总帖子的6%，而与检测相关的帖子占35%，与诊断相关的帖子占25%，与治疗相关的帖子占32%。总体而言，从Synthesio中提取的与新冠肺炎治疗相关的社交媒体帖子所观察到的趋势与谷歌上新冠肺炎搜索趋势基本一致，表明公众话语与社交媒体及互联网搜索行为之间存在潜在关系。
本研究的结果有可能为英国未来公共卫生紧急情况期间的公共卫生干预、沟通策略和医疗保健政策的决策提供信息。
