Burke Meghan M, Terol Kaori, Best Megan, Cheung Catherine W, Hardy Abby
Department of special education, Vanderbilt University.
MIND Institute, University of California at Davis.
J Dev Phys Disabil. 2025 Apr;37(2):321-345. doi: 10.1007/s10882-024-09954-8. Epub 2024 Mar 12.
Increasingly, interventions are being developed and tested with families of color, including Latino families of transition-aged youth with autism. However, without culturally responsive measures, it is difficult to determine whether an intervention is effective. The purpose of this study was to improve the cultural responsiveness of measures related to: knowledge of adult disability services, advocacy, and family empowerment.
Altogether, 30 Latinx parents of youth with autism participated in this study. Participants completed surveys and interviews to inform changes to the measures.
Changes were made in relation to: wording, format, and concepts. The revised measures were demonstrated to have high reliability.
Implications for future research and practice are discussed.
越来越多的干预措施正在针对有色人种家庭进行开发和测试,包括患有自闭症的过渡年龄青少年的拉丁裔家庭。然而,如果没有具有文化适应性的测量方法,就很难确定一项干预措施是否有效。本研究的目的是提高与成人残疾服务知识、宣传和家庭赋权相关的测量方法的文化适应性。
共有30位患有自闭症青少年的拉丁裔父母参与了本研究。参与者完成了调查和访谈,以为测量方法的修改提供信息。
在措辞、形式和概念方面进行了修改。经证明,修订后的测量方法具有很高的可靠性。
讨论了对未来研究和实践的启示。