Taylor Julie Lounds, Hodapp Robert M, Burke Meghan M, Waitz-Kudla Sydney N, Rabideau Carol
Department of Pediatrics, Vanderbilt University Medical Center, Nashville, TN, USA.
Vanderbilt Kennedy Center, Vanderbilt University Medical Center, PMB 40-230 Appleton Pl., Nashville, TN, 37203, USA.
J Autism Dev Disord. 2017 Mar;47(3):846-857. doi: 10.1007/s10803-016-2994-z.
This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services-the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.
本研究展示了一项试点随机对照试验的结果，该试验测试了一项为期12周的干预措施，以培训患有自闭症谱系障碍（ASD）青少年的家长，使其能够为成人残疾服务进行倡导——志愿者倡导计划-过渡阶段（VAP-T）。参与者包括41名在高中毕业后两年内患有ASD青少年的家长，他们被随机分配到治疗组（N = 20）或等待名单对照组（N = 21）。在干预前后收集的结果包括家长对成人服务的了解、倡导技能——舒适度和赋权情况。VAP-T具有可接受的可行性、治疗保真度和可接受性。参与VAP-T后，干预组的家长（与对照组相比）对成人服务系统了解更多，在进行倡导时更有技能/更自在，并且感觉更有力量。
