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美国临终关怀机构中影响非裔美国人精神关怀的因素:对其护理人员、神职人员和临终关怀牧师观点的探索性研究

Factors Influencing Spiritual Care for African Americans in Hospice in the United States: An Exploratory Study of the Perspectives of Their Caregivers, Clergy and Hospice Chaplains.

作者信息

Quigley Denise D, McCleskey Sara G, Lesandrini Jason, McNeal Natalie, Qureshi Nabeel

机构信息

RAND Corporation, 1776 Main Street, Santa Monica, CA, 90401, USA.

Wellstar Health System, Marietta, GA, USA.

出版信息

J Relig Health. 2025 Aug 12. doi: 10.1007/s10943-025-02416-1.

DOI:10.1007/s10943-025-02416-1
PMID:40797145
Abstract

Caregivers of African American hospice patients report unsatisfactory spiritual support in hospice. Hospice professionals, chaplains, clergy, and policymakers need to understand factors influencing spiritual care of African American hospice patients to advance equitable end-of-life and hospice care. We partnered with large community hospice in Georgia, USA, and interviewed caregivers of African American hospice decedents, their clergy, and chaplains. We heard caregivers of African American hospice patients desired chaplains to pray, visit frequently and be present. Caregivers' lack of knowledge about hospice, general medical mistrust, and clergy's minimal understanding of the breadth of spiritual care were barriers to adequate spiritual care.

摘要

非裔美国临终关怀患者的护理人员报告称,临终关怀机构提供的精神支持不尽人意。临终关怀专业人员、牧师、神职人员和政策制定者需要了解影响非裔美国临终关怀患者精神护理的因素,以推动公平的临终和临终关怀服务。我们与美国佐治亚州的一家大型社区临终关怀机构合作,采访了非裔美国临终关怀逝者的护理人员、他们的神职人员和牧师。我们了解到,非裔美国临终关怀患者的护理人员希望牧师祈祷、经常探访并陪伴在侧。护理人员对临终关怀缺乏了解、普遍对医疗不信任,以及神职人员对精神护理广度的了解有限,这些都是提供充分精神护理的障碍。

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Factors Influencing Spiritual Care for African Americans in Hospice in the United States: An Exploratory Study of the Perspectives of Their Caregivers, Clergy and Hospice Chaplains.美国临终关怀机构中影响非裔美国人精神关怀的因素:对其护理人员、神职人员和临终关怀牧师观点的探索性研究
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本文引用的文献

1
Roles of Chaplains and Clergy in Spiritual Care for African Americans in Hospice: A Pilot Study.临终关怀中牧师和神职人员对非裔美国人精神关怀的作用:一项试点研究。
Am J Hosp Palliat Care. 2025 Aug;42(8):717-727. doi: 10.1177/10499091241268549. Epub 2024 Aug 2.
2
Extending Advance Care Planning to Black Americans in the Community: A Pilot Study of the PREPARE Program.将预先医疗指示推广至社区中的非裔美国人:预备计划的初步研究。
J Pain Symptom Manage. 2021 Jul;62(1):e4-e9. doi: 10.1016/j.jpainsymman.2021.02.029. Epub 2021 Feb 27.
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Racial/Ethnic Disparities in Nursing Home End-of-Life Care: A Systematic Review.
养老院临终关怀中的种族/民族差异:系统评价。
J Am Med Dir Assoc. 2021 Feb;22(2):279-290.e1. doi: 10.1016/j.jamda.2020.12.005. Epub 2021 Jan 9.
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Association between Receipt of Emotional Support and Caregivers' Overall Hospice Rating.接受情感支持与照料者对临终关怀总体评分之间的关系。
J Palliat Med. 2021 May;24(5):689-696. doi: 10.1089/jpm.2020.0324. Epub 2020 Oct 6.
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Developing and Testing the Feasibility of a Culturally Based Tele-Palliative Care Consult Based on the Cultural Values and Preferences of Southern, Rural African American and White Community Members: A Program by and for the Community.基于美国南部农村非裔美国人和白人社区成员的文化价值观与偏好,开发并测试一种基于文化的远程姑息治疗咨询服务的可行性:一项由社区开展并为社区服务的项目。
Health Equity. 2020 Mar 26;4(1):52-83. doi: 10.1089/heq.2019.0120. eCollection 2020.
6
Engaging the African American Church to Improve Communication About Palliative Care and Hospice: Lessons From a Multilevel Approach.促使非裔美国教会改善有关姑息治疗和临终关怀的沟通:多层次方法的经验教训。
J Palliat Care. 2019 Jul;34(3):168-174. doi: 10.1177/0825859718810718. Epub 2018 Dec 12.
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Spiritual Needs and Perception of Quality of Care and Satisfaction With Care in Hematology/Medical Oncology Patients: A Multicultural Assessment.血液科/肿瘤内科患者的精神需求及对护理质量的感知和护理满意度:一项多文化评估。
J Pain Symptom Manage. 2018 Jan;55(1):56-64.e1. doi: 10.1016/j.jpainsymman.2017.08.009. Epub 2017 Aug 23.
8
Black And Hispanic Patients Receive Hospice Care Similar To That Of White Patients When In The Same Hospices.黑人和西班牙裔患者在同一家临终关怀机构接受的临终关怀与白人患者相似。
Health Aff (Millwood). 2017 Jul 1;36(7):1283-1290. doi: 10.1377/hlthaff.2017.0151.
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Disaggregating ethnoracial disparities in physician trust.剖析医生信任方面的种族差异
Soc Sci Res. 2015 Nov;54:1-20. doi: 10.1016/j.ssresearch.2015.06.020. Epub 2015 Jun 27.