Rhys-Jones Dakota R, Ghersin Itai, Argyriou Orestis, Blackwell Sue, Lester Jasmine, Gibson Peter R, Halmos Emma P, Ardalan Zaid, Warusavitarne Janindra, Sahnan Kapil, Segal Jonathan P, Hart Ailsa, Yao Chu K
Department of Gastroenterology, School of Translational Medicine, Monash University, Melbourne 3004, Australia.
Department of Gastroenterology, St Mark's National Bowel Hospital & Academic Institute, London NW10 7NS, UK.
J Clin Med. 2025 Jul 29;14(15):5348. doi: 10.3390/jcm14155348.
: Patients with an ileoanal pouch change their diet to manage their symptoms and will often resort to the internet for nutrition advice. Currently, no evidence-based dietary guidelines exist to inform online resources. Hence, this study aims to assess the quality of online nutrition information directed towards patients with an ileoanal pouch. : A systematic Google search was conducted to identify consumer websites including information on nutrition for those with ileoanal pouches. Quality was assessed using the DISCERN instrument, and the readability of written content was assessed using the Flesch-Kincaid score. A summative content analysis was used to identify the frequency of particular topics. Websites were also assessed against standards from the National Institute for Health and Care Excellence (NICE) framework for shared decision-making support tools. : A total of 12 websites met the inclusion criteria. Mean total DISCERN scores across all websites are 33 out of 75, indicating that overall, the websites were of poor quality. The mean Flesch-Kincaid score was 57 out of 100, or "fairly difficult" in terms of readability. The main themes according to the content analysis were "general dietary advice for pouch", "dietary strategies for symptom management", "addressing risks associated with having a pouch", and "optimisation of nutritional intake". Overall, websites did not meet the standards for shared decision-making. : Online nutrition information for patients with an ileoanal pouch is of poor quality and difficult to understand. There is a need for higher quality online resources for these patients, ideally co-produced with a multidisciplinary team and patient, to provide patients with good quality, understandable, and accessible nutrition information.
回肠肛管袋患者会改变饮食来控制症状,并且常常会在网上寻求营养建议。目前,尚无基于证据的饮食指南为在线资源提供指导。因此,本研究旨在评估针对回肠肛管袋患者的在线营养信息的质量。:通过谷歌进行系统搜索,以识别包含回肠肛管袋患者营养信息的消费者网站。使用DISCERN工具评估质量,使用弗莱什-金凯德分数评估书面内容的可读性。采用总结性内容分析法来确定特定主题的出现频率。还根据国家卫生与保健优化研究所(NICE)共享决策支持工具框架的标准对网站进行评估。:共有12个网站符合纳入标准。所有网站的DISCERN总分平均为75分中的33分,表明总体而言,这些网站质量较差。弗莱什-金凯德分数平均为100分中的57分,就可读性而言为“相当困难”。根据内容分析,主要主题为“袋的一般饮食建议”、“症状管理的饮食策略”、“解决与有袋相关的风险”以及“营养摄入的优化”。总体而言,网站未达到共享决策的标准。:针对回肠肛管袋患者的在线营养信息质量较差且难以理解。需要为这些患者提供更高质量的在线资源,理想情况下由多学科团队和患者共同制作,以便为患者提供高质量、易懂且可获取的营养信息。