帕金森病患者使用Cue2walk智能提示装置应对步态冻结的用户体验

User Experiences of the Cue2walk Smart Cueing Device for Freezing of Gait in People with Parkinson's Disease.

作者信息

van der Laan Matthijs, Rietberg Marc B, van der Ent Martijn, Waardenburg Floor, de Groot Vincent, Nonnekes Jorik, van Wegen Erwin E H

机构信息

Department of Rehabilitation Medicine, Amsterdam University Medical Center, 1081 HZ Amsterdam, The Netherlands.

Amsterdam Movement Sciences, Rehabilitation & Development, 1081 HZ Amsterdam, The Netherlands.

出版信息

Sensors (Basel). 2025 Jul 30;25(15):4702. doi: 10.3390/s25154702.

Abstract

Freezing of gait (FoG) impairs mobility and daily functioning and increases the risk of falls, leading to a reduced quality of life (QoL) in people with Parkinson's disease (PD). The Cue2walk, a wearable smart cueing device, can detect FoG and hereupon provides rhythmic cues to help people with PD manage FoG in daily life. This study investigated the user experiences and device usage of the Cue2walk, and its impact on health-related QoL, FoG and daily activities. Twenty-five users of the Cue2walk were invited to fill out an online survey, which included a modified version of the EQ-5D-5L, tailored to the use of the Cue2walk, and its scale for health-related QoL, three FoG-related questions, and a question about customer satisfaction. Sixteen users of the Cue2walk completed the survey. Average device usage per day was 9 h (SD 4). Health-related QoL significantly increased from 5.2/10 (SD 1.3) to 6.2/10 (SD 1.3) ( = 0.005), with a large effect size (Cohen's d = 0.83). A total of 13/16 respondents reported a positive effect on FoG duration, 12/16 on falls, and 10/16 on daily activities and self-confidence. Customer satisfaction was 7.8/10 (SD 1.7). This pilot study showed that Cue2walk usage per day is high and that 15/16 respondents experienced a variety of positive effects since using the device. To validate these findings, future studies should include a larger sample size and a more extensive set of questionnaires and physical measurements monitored over time.

摘要

冻结步态(FoG)会损害行动能力和日常功能,并增加跌倒风险,导致帕金森病(PD)患者的生活质量(QoL)下降。Cue2walk是一种可穿戴智能提示设备,能够检测到冻结步态,并据此提供有节奏的提示,以帮助帕金森病患者在日常生活中应对冻结步态。本研究调查了Cue2walk的用户体验、设备使用情况及其对健康相关生活质量、冻结步态和日常活动的影响。邀请了25名Cue2walk用户填写一份在线调查问卷,其中包括针对Cue2walk使用情况进行修改的EQ-5D-5L及其健康相关生活质量量表、三个与冻结步态相关的问题,以及一个关于客户满意度的问题。16名Cue2walk用户完成了调查。每天平均设备使用时间为9小时(标准差4)。健康相关生活质量从5.2/10(标准差1.3)显著提高到6.2/10(标准差1.3)(P = 0.005),效应量较大(科恩d值 = 0.83)。共有13/16的受访者报告该设备对冻结步态持续时间有积极影响,12/16的受访者报告对跌倒情况有积极影响,10/16的受访者报告对日常活动和自信心有积极影响。客户满意度为7.8/10(标准差1.7)。这项初步研究表明,Cue2walk的每日使用量很高,并且15/16的受访者自使用该设备以来体验到了各种积极影响。为了验证这些发现,未来的研究应纳入更大的样本量,并采用更广泛的问卷集以及随时间监测的一系列身体测量指标。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab15/12349309/11abd60b1fb4/sensors-25-04702-g001.jpg

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