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理解文化对临终、姑息和临终关怀的影响:一项叙述性综述。

Understanding the Influence of Culture on End-of-Life, Palliative, and Hospice Care: A Narrative Review.

作者信息

Hira Veena, Palnati Sainamitha R, Bhakta Saajan

机构信息

Department of Epidemiology and Biostatistics, University of Western Ontario, London, CAN.

Department of Research, Kansas College of Osteopathic Medicine, Wichita, USA.

出版信息

Cureus. 2025 Jul 15;17(7):e87960. doi: 10.7759/cureus.87960. eCollection 2025 Jul.

Abstract

Cultural beliefs and values significantly shape end-of-life care decisions, including palliative and hospice care approaches. These cultural influences affect how patients and families view death, pain management, and medical decision-making. This narrative review examines how cultural factors impact care delivery for patients with terminal diagnoses, with particular attention to improving patient-provider communication and trust across diverse populations. A search of the current literature was conducted from March 1, 2022, to May 1, 2022, through the following databases: PubMed, ScienceDirect, Google Scholar, Directory of Open Access Journals, JSTOR, PsycINFO, ERIC Database (via EBSCOhost), and Academic Search Complete. The following key terms were used with Boolean operations: culture, demographic, end-of-life care, hospice, palliative care, terminal illness, and truth disclosure. A combination of qualitative, quantitative, mixed methods, and review studies was included in the review. The Mixed Methods Appraisal Tool was used to appraise quantitative and qualitative literature critically, and the Risk of Bias in Systematic Review was used to appraise reviews critically. This narrative review included 25 relevant publications related to influence of culture and patient demographics on end-of-life care, hospice, and palliative care. As each culture has its own unique views on death and dying, it is crucial to note these cultural differences when assisting with end-of-life care to best align with patients' beliefs and values. Themes such as cultural barriers, communication preferences and family roles emerged from the publications. The findings of this review highlight the critical role that cultural beliefs and values play in shaping end-of-life care experiences. However, gaps remain in the literature regarding how specific cultural nuances influence care decisions, communication preferences, and family dynamics. Future research should focus on exploring underrepresented ethnic and cultural groups to better understand their unique perspectives on death, dying, and medical decision-making. Additionally, there is a need to develop and evaluate culturally tailored interventions that promote patient-centered care, enhance provider-patient communication, and build trust in end-of-life care settings. Addressing these gaps will help ensure that care is respectful of and responsive to the diverse cultural contexts in which patients and families make these deeply personal decisions.

摘要

文化信仰和价值观在很大程度上塑造了临终关怀决策,包括姑息治疗和临终关怀方法。这些文化影响因素会影响患者及其家属对死亡、疼痛管理和医疗决策的看法。本叙述性综述探讨了文化因素如何影响晚期诊断患者的护理服务,特别关注改善不同人群中患者与医护人员之间的沟通与信任。通过以下数据库对2022年3月1日至2022年5月1日期间的当前文献进行了检索:PubMed、ScienceDirect、谷歌学术、开放获取期刊目录、JSTOR、PsycINFO、ERIC数据库(通过EBSCOhost)和学术搜索完整版。使用以下关键词并结合布尔运算:文化、人口统计学、临终关怀、临终关怀院、姑息治疗、晚期疾病和真相披露。本综述纳入了定性、定量、混合方法和综述研究。使用混合方法评估工具对定量和定性文献进行严格评估,并使用系统评价中的偏倚风险对综述进行严格评估。本叙述性综述纳入了25篇与文化和患者人口统计学对临终关怀、临终关怀院和姑息治疗的影响相关的相关出版物。由于每种文化对死亡和临终都有其独特的看法,因此在协助临终关怀时,注意这些文化差异至关重要,以便最好地符合患者的信仰和价值观。出版物中出现了文化障碍、沟通偏好和家庭角色等主题。本综述的结果突出了文化信仰和价值观在塑造临终关怀体验中所起的关键作用。然而,关于特定文化细微差别如何影响护理决策、沟通偏好和家庭动态,文献中仍存在空白。未来的研究应侧重于探索代表性不足的种族和文化群体,以更好地了解他们对死亡、临终和医疗决策的独特观点。此外,需要开发和评估针对特定文化的干预措施,以促进以患者为中心的护理,加强医护人员与患者之间的沟通,并在临终关怀环境中建立信任。解决这些差距将有助于确保护理尊重并响应患者及其家属做出这些深刻个人决策的不同文化背景。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0f54/12351351/8068e92367aa/cureus-0017-00000087960-i01.jpg

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