Enersen Nina, Løke Daniel, Roaldsen Kirsti Skavberg, Sviland Randi
Department for Multitrauma, Neurology and Burns, Sunnaas Rehabilitation Hospital, Bjørnemyr, Norway.
Department for Functional Assessment, Sunnaas Rehabilitation Hospital, Bjørnemyr, Norway.
Front Rehabil Sci. 2025 Aug 7;6:1542441. doi: 10.3389/fresc.2025.1542441. eCollection 2025.
Multiple amputations are a rare outcome following critical illness or injury, with significant impacts on the lives of those affected. This study aimed to explore and describe experiences of everyday life and municipal rehabilitation services among individuals with multiple amputations after their discharge from specialized rehabilitation in Norway.
A qualitative research design was used with a lifeworld phenomenology perspective. Data were collected through individual, semi-structured interviews with five community-dwelling adults-one man and four women-who had multiple amputations, including at least one upper extremity. Data were analyzed using systematic text condensation.
Four categories emerged to describe the challenges of living with multiple amputations: "Navigating Dependence and Bodily Limitations", "Challenges in Regaining Autonomy", "Rehabilitation Challenges and Adjusting Expectations", and "Adapting to a New Normal".
Participants experienced dependence, vulnerability, and a restricted lifeworld. The contrast between life with and without prosthetics underscores their vital role in autonomy. Unmet expectations of local rehabilitation services reveal structural barriers. The study highlights their experiences, advocating a lifeworld perspective to improve rehabilitation services.
在危重病或受伤后出现多处截肢是一种罕见的结果，会对受影响者的生活产生重大影响。本研究旨在探讨和描述挪威接受专业康复治疗出院后的多处截肢患者的日常生活经历和市政康复服务情况。
采用定性研究设计，从生活世界现象学角度进行研究。通过对五名社区居住的成年人（一名男性和四名女性）进行个体半结构化访谈收集数据，这些人都有多处截肢，包括至少一只上肢。使用系统文本浓缩法对数据进行分析。
出现了四个类别来描述多处截肢患者的生活挑战：“应对依赖和身体限制”“恢复自主的挑战”“康复挑战与调整期望”以及“适应新常态”。
参与者经历了依赖、脆弱和受限的生活世界。有假肢和无假肢生活之间的对比凸显了假肢在自主性方面的关键作用。对当地康复服务的期望未得到满足揭示了结构性障碍。该研究突出了他们的经历，倡导从生活世界角度改善康复服务。
