Gitlin Laura N, Marx Katherine B, Roth David L, Anderson Keith, Dabelko-Schoeny Holly, Scerpella Danny, Parker Lauren J, Koeuth Sokha, Gaugler Joseph E
College of Nursing and Health Professions, Drexel University, Philadelphia, Pennsylvania, United States.
Center for Equity in Aging, School of Nursing, Johns Hopkins University, Baltimore, Maryland, United States.
Innov Aging. 2025 Jul 1;9(8):igaf074. doi: 10.1093/geroni/igaf074. eCollection 2025 Aug.
In a cluster randomized trial, we found that augmenting adult day services (ADS) with a multicomponent caregiver support program, ADS Plus, reduced caregiver depressive symptoms and increased ADS use. Unclear is whether the program was implemented with fidelity across sites and the relationship of fidelity to site characteristics and caregiver outcomes.
Sixteen ADS sites were randomly assigned to ADS Plus ( = 102 caregivers), which offered dementia education, referrals/linkages, validation/support, and strategies for self-care and caregiver-identified challenges. Sites were categorized with high, moderate, or low fidelity based on the number of caregivers enrolled (delivery), care challenges addressed, and prescriptions (strategies) provided (receipt). We examined staff documentation of delivery, receipt, and enactment characteristics, the relationship of fidelity to site characteristics, and caregiver outcomes (depressive symptoms, stress) collected by interviewers 3, 6, and 12 months postbaseline.
Of 102 caregivers, 79.5% were in high ( = 58, 56.9%) or moderate ( = 23, 22.6%), versus 20.6% ( = 21) in low-fidelity sites. High/moderate versus low-fidelity sites delivered more sessions and spent less preparatory time. Caregiver receptivity to sessions was high across all sites. Caregivers with enactment data ( = 43) reported reduced difficulties and upset in high/moderate fidelity sites, and enhanced confidence managing care challenges in high-fidelity sites ( < .0001). Sites with higher percentages of White, non-Hispanic families ( = .006) and dementia clients ( = .004) had better fidelity. At three and 12 months but not at 6 months, caregivers in high/moderate fidelity sites had greater reductions in depressive symptoms and stress (<.05) compared to those in low-fidelity sites.
Most caregivers received ADS Plus with moderate to high fidelity. High/moderate fidelity sites delivered more sessions to more caregivers with substantially stronger caregiver benefits. As fidelity varied by site characteristics, adaptations to staff training and the program appear needed for low-fidelity sites.
NCT02927821.
在一项整群随机试验中,我们发现,通过一项多成分照护者支持计划(成人日间服务增强版,即ADS Plus)来强化成人日间服务(ADS),可减轻照护者的抑郁症状并增加ADS的使用量。尚不清楚该计划在各站点是否得到了忠实执行,以及忠实度与站点特征和照护者结局之间的关系。
16个ADS站点被随机分配至ADS Plus组(102名照护者),该组提供痴呆症教育、转诊/联系、确认/支持,以及自我护理和照护者确定的挑战应对策略。根据登记照护者的数量(实施情况)、解决的照护挑战以及提供的处方(策略)(接受情况),将站点分为高、中、低忠实度三类。我们检查了工作人员关于实施、接受和制定特征的记录,忠实度与站点特征的关系,以及由访员在基线后3个月、6个月和12个月收集的照护者结局(抑郁症状、压力)。
在102名照护者中,79.5%处于高忠实度(n = 58,56.9%)或中忠实度(n = 23,22.6%)站点,而低忠实度站点的比例为20.6%(n = 21)。高/中忠实度站点与低忠实度站点相比,开展的课程更多,准备时间更短。所有站点的照护者对课程的接受度都很高。有制定数据的照护者(n = 43)报告称,在高/中忠实度站点中困难和烦恼减少,在高忠实度站点中应对照护挑战的信心增强(P <.0001)。白人、非西班牙裔家庭比例较高(P = 0.006)和痴呆症患者比例较高(P = 0.004)的站点忠实度更高。在3个月和12个月时,但在6个月时没有,高/中忠实度站点的照护者与低忠实度站点的照护者相比,抑郁症状和压力的减轻幅度更大(P <.05)。
大多数照护者接受的ADS Plus忠实度为中到高。高/中忠实度站点为更多照护者提供了更多课程,照护者受益显著更强。由于忠实度因站点特征而异,低忠实度站点似乎需要对工作人员培训和计划进行调整。
NCT02927821。