Hall C D, Porter P
J Pediatr. 1983 Feb;102(2):210-4. doi: 10.1016/s0022-3476(83)80522-8.
School problems are common in children with neuromuscular disease irrespective of their degree of handicap. They are related to difficulties in transportation and access, difficulties with adaptation of school tasks to the motorically handicapped, and difficulties that arise because of misunderstanding of the disease processes by teachers and parents. Most of these can be easily rectified by efforts by the clinic staff to educate school personnel and to enlist them as members of the treatment team. In view of the importance of the school experience to this group of patients, it is urged that these problems be identified and aggressively managed by those involved in the care of neuromuscularly handicapped children.
学校问题在患有神经肌肉疾病的儿童中很常见,无论其残疾程度如何。这些问题与交通和入学困难、学校任务难以适应运动障碍儿童、以及教师和家长对疾病过程的误解所产生的困难有关。通过诊所工作人员努力对学校人员进行教育并争取他们成为治疗团队的成员,大多数这些问题都可以轻松得到解决。鉴于学校经历对这组患者的重要性,敦促那些参与照顾神经肌肉残疾儿童的人员识别并积极处理这些问题。