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为亨廷顿舞蹈症患者提供的社会工作。

Social work with victims of Huntington's disease.

作者信息

Sands R G

出版信息

Soc Work Health Care. 1984 Summer;9(4):63-71. doi: 10.1300/J010v09n04_06.

DOI:10.1300/J010v09n04_06
PMID:6237442
Abstract

Huntington's Disease (HD) is a progressive, hereditary neurological disease that affects cognitive, behavioral, and physical functioning. It has a severe impact on the family, the members of which are affected by the patient as well as the vulnerability of children at risk. Social workers can provide support and anticipatory guidance to patients and their families. Adult children can benefit from genetic counseling regarding their own at risk status. Community involvement in voluntary organizations is also beneficial.

摘要

亨廷顿舞蹈症(HD)是一种进行性遗传性神经疾病,会影响认知、行为和身体功能。它对家庭有严重影响,患者及其家庭成员都会受到影响,同时处于风险中的儿童也很脆弱。社会工作者可以为患者及其家庭提供支持和前瞻性指导。成年子女可以从关于自身风险状况的遗传咨询中受益。社区参与志愿组织也有益处。

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