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一项家庭哮喘项目的评估

Evaluation of a family asthma program.

作者信息

Hindi-Alexander M C, Cropp G J

出版信息

J Allergy Clin Immunol. 1984 Oct;74(4 Pt 1):505-10. doi: 10.1016/0091-6749(84)90386-5.

Abstract

This article presents the results of an evaluation of a 12-hour patient education program for children with asthma and their parents. Ninety-two of 147 participants (63%) completed the 1-year follow-up. The effectiveness of the family asthma program (FAP) was measured by a "knowledge of asthma" questionnaire administered before and at the last session; it demonstrated a significant improvement for parents (p less than 0.001) and children (p less than 0.01). The "multidimensional health locus of control scales" (administered to a subgroup of 42 adults and 29 children before and 3 mo after the FAP) demonstrated a significant change in attitude toward asthma for both parents (p less than 0.05) and children (p less than 0.005), indicating an interest to assume more responsibility for self-management. In addition, eight variables were measured in the children before the FAP was started and longitudinally on a monthly basis for 1 yr after completion of the FAP. Three of these variables demonstrated a significant change: total activities were increased (p less than 0.001), unscheduled health-care visits were decreased (p less than 0.005), and school absences were decreased (p less than 0.005). Four variables did not reach statistical significance but did change in the expected direction: medication score, 10% decrease; emergency treatments, 24% decrease; hospital admissions, 44% decrease; school activities, 5% increase. These results demonstrate that this FAP effectively complemented medical care and provided a useful preparation for self-management.

摘要

本文介绍了一项针对哮喘患儿及其父母的12小时患者教育项目的评估结果。147名参与者中有92人(63%)完成了1年的随访。家庭哮喘项目(FAP)的有效性通过在项目开始前和最后一次课程时进行的“哮喘知识”问卷调查来衡量;结果显示,父母(p<0.001)和孩子(p<0.01)的哮喘知识都有显著提高。“多维健康控制点量表”(在FAP之前和之后3个月对42名成人和29名儿童的亚组进行测量)显示,父母(p<0.05)和孩子(p<0.005)对哮喘的态度都有显著变化,表明他们有兴趣承担更多自我管理的责任。此外,在FAP开始前对儿童进行了8个变量的测量,并在FAP完成后的1年里每月进行纵向测量。其中3个变量有显著变化:总活动量增加(p<0.001),非计划的医疗就诊次数减少(p<0.005),缺课次数减少(p<0.005)。4个变量未达到统计学意义,但确实朝着预期方向变化:药物评分下降10%;急诊治疗次数下降24%;住院次数下降44%;学校活动增加5%。这些结果表明,这个FAP有效地补充了医疗护理,并为自我管理提供了有益的准备。

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