Godkin M A, Krant M J, Doster N J
Int J Psychiatry Med. 1983;13(2):153-65. doi: 10.2190/g526-4w46-vp27-tjb6.
The impact of a hospital-based Hospice service for late-stage cancer patients, on the families of fifty-eight bereaved spouses was studied, retrospectively. Hospice care in general was rated significantly higher when compared to the prior care (p less than .001) received by patients and families. Hospice care contributed to improved family functioning and well-being, with the vast majority of spouses reporting feelings of increased support, improved coping by all family members and increased closeness, when compared to prior care. Consequently, over three-quarters of the families reported being emotionally prepared, and prepared in a practical sense, for the death of their loved one. Families appear to be coping reasonably well during bereavement especially those who reported feeling emotionally prepared for the death. Health problems were reported as a large problem in 15 percent of the respondents, which compares favorably to previously documented research on bereavement and illness. These findings indicate that a Hospice mode of care, with its support of families during terminal and bereavement stages, impacts significantly on families' abilities to cope with the terminal phase and adapt afterwards.
本研究回顾性地调查了一家医院的临终关怀服务对58位丧偶配偶家庭的影响。总体而言,与患者及其家庭之前接受的护理相比,临终关怀服务的评分显著更高(p值小于0.001)。与之前的护理相比,临终关怀服务有助于改善家庭功能和幸福感,绝大多数配偶表示得到了更多支持,所有家庭成员的应对能力有所提高,关系更加亲密。因此,超过四分之三的家庭表示在情感上和实际生活中都为亲人的死亡做好了准备。在丧亲期间,家庭似乎应对得相当不错,尤其是那些表示在情感上为亲人的死亡做好准备的家庭。15%的受访者表示健康问题是一个大问题,这一比例优于之前关于丧亲和疾病的研究记录。这些发现表明,临终关怀护理模式在终末期和丧亲阶段为家庭提供支持,对家庭应对终末期阶段及之后适应的能力有显著影响。