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临终关怀对家庭的影响。

The impact of hospice care on families.

作者信息

Godkin M A, Krant M J, Doster N J

出版信息

Int J Psychiatry Med. 1983;13(2):153-65. doi: 10.2190/g526-4w46-vp27-tjb6.

DOI:10.2190/g526-4w46-vp27-tjb6
PMID:6642876
Abstract

The impact of a hospital-based Hospice service for late-stage cancer patients, on the families of fifty-eight bereaved spouses was studied, retrospectively. Hospice care in general was rated significantly higher when compared to the prior care (p less than .001) received by patients and families. Hospice care contributed to improved family functioning and well-being, with the vast majority of spouses reporting feelings of increased support, improved coping by all family members and increased closeness, when compared to prior care. Consequently, over three-quarters of the families reported being emotionally prepared, and prepared in a practical sense, for the death of their loved one. Families appear to be coping reasonably well during bereavement especially those who reported feeling emotionally prepared for the death. Health problems were reported as a large problem in 15 percent of the respondents, which compares favorably to previously documented research on bereavement and illness. These findings indicate that a Hospice mode of care, with its support of families during terminal and bereavement stages, impacts significantly on families' abilities to cope with the terminal phase and adapt afterwards.

摘要

本研究回顾性地调查了一家医院的临终关怀服务对58位丧偶配偶家庭的影响。总体而言,与患者及其家庭之前接受的护理相比,临终关怀服务的评分显著更高(p值小于0.001)。与之前的护理相比,临终关怀服务有助于改善家庭功能和幸福感,绝大多数配偶表示得到了更多支持,所有家庭成员的应对能力有所提高,关系更加亲密。因此,超过四分之三的家庭表示在情感上和实际生活中都为亲人的死亡做好了准备。在丧亲期间,家庭似乎应对得相当不错,尤其是那些表示在情感上为亲人的死亡做好准备的家庭。15%的受访者表示健康问题是一个大问题,这一比例优于之前关于丧亲和疾病的研究记录。这些发现表明,临终关怀护理模式在终末期和丧亲阶段为家庭提供支持,对家庭应对终末期阶段及之后适应的能力有显著影响。

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2
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引用本文的文献

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Psychiatr Q. 2020 Mar;91(1):165-181. doi: 10.1007/s11126-019-09694-5.
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Predictors of Hospice Enrollment for Patients With Advanced Heart Failure and Effects on Health Care Use.预测晚期心力衰竭患者入住临终关怀的因素及其对医疗保健利用的影响。
JACC Heart Fail. 2018 Sep;6(9):780-789. doi: 10.1016/j.jchf.2018.04.009. Epub 2018 Aug 8.
3
Impact of In-Hospital Death on Spending for Bereaved Spouses.
住院死亡对丧偶配偶支出的影响。
Health Serv Res. 2018 Aug;53 Suppl 1(Suppl Suppl 1):2696-2717. doi: 10.1111/1475-6773.12841. Epub 2018 Feb 28.
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Hospice utilization in patients with malignant gliomas.恶性脑胶质瘤患者的临终关怀利用。
Neuro Oncol. 2018 Mar 27;20(4):538-545. doi: 10.1093/neuonc/nox196.
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Death Anxiety Resilience; a Mixed Methods Investigation.死亡焦虑复原力:一项混合方法研究。
Psychiatr Q. 2017 Sep;88(3):635-651. doi: 10.1007/s11126-016-9483-6.
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Spousal Characteristics and Older Adults' Hospice Use: Understanding Disparities in End-of-Life Care.配偶特征与老年人临终关怀服务的使用:理解临终关怀中的差异
J Palliat Med. 2016 May;19(5):509-15. doi: 10.1089/jpm.2015.0399. Epub 2016 Mar 18.
7
Association Between Hospice Use and Depressive Symptoms in Surviving Spouses.临终关怀服务的使用与幸存配偶的抑郁症状之间的关联。
JAMA Intern Med. 2015 Jul;175(7):1138-46. doi: 10.1001/jamainternmed.2015.1722.
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Complicated grief symptoms in caregivers of persons with lung cancer: the role of family conflict, intrapsychic strains, and hospice utilization.肺癌患者照顾者的复杂悲痛症状:家庭冲突、内心紧张和临终关怀利用的作用。
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Materials to prepare hospice families for dying in the home.为临终关怀家庭在家中离世做准备的材料。
J Palliat Med. 2008 Sep;11(7):969-72. doi: 10.1089/jpm.2008.0072.