Enterline J P, Kammer A, Gold E B, Lenhard R, Powell G C
Am J Public Health. 1984 May;74(5):449-52. doi: 10.2105/ajph.74.5.449.
Authorities in 52 United States jurisdictions were contacted to determine the existence and structure of cancer reporting laws and registration systems. Of the 52 US reporting areas examined; 30 (58 per cent) had a law requiring cancer reporting; 36 (69 per cent) of the reporting areas had at least one centralized cancer registry covering a geographically defined population. Among the 30 areas with cancer reporting laws, 26 had population-based registries; of the 22 areas with no cancer reporting law, 10 had a population-based registry. Among the 30 areas with cancer reporting laws, 12 required one reporting source (hospital, physician, laboratory), 11 required two reporting sources, four required three reporting sources, two areas gave the health department the authority to designate reporting sources, and one did not specify any reporting source. While 11 of the laws provided legal protection for both the data provider and the cancer patient, eight did not specify any such legal protection. While 13 laws made provisions for research uses of cancer reporting data, 17 did not do so. None of the laws had ever been legally tested at or beyond the State Appellate Court level.
研究人员联系了美国52个司法管辖区的有关部门，以确定癌症报告法律和登记系统的存在情况及结构。在所调查的52个美国报告地区中，30个（58%）有要求报告癌症的法律；36个（69%）报告地区至少有一个覆盖特定地理区域人群的中央癌症登记处。在有癌症报告法律的30个地区中，26个有基于人群的登记处；在没有癌症报告法律的22个地区中，10个有基于人群的登记处。在有癌症报告法律的30个地区中，12个要求一个报告来源（医院、医生、实验室），11个要求两个报告来源，4个要求三个报告来源，2个地区赋予卫生部门指定报告来源的权力，1个未明确规定任何报告来源。虽然11项法律为数据提供者和癌症患者提供了法律保护，但8项法律未明确规定任何此类法律保护。虽然13项法律对癌症报告数据的研究用途作出了规定，但17项法律未作此规定。这些法律均未在州上诉法院或更高层面接受过法律检验。
