Smurl J F, Weaver D D, Jarmas A, Padilla L M
Am J Med Genet. 1984 Apr;17(4):773-81. doi: 10.1002/ajmg.1320170408.
A couple is presented who underwent prenatal counseling and amniocentesis for sex determination because the wife was an obligate carrier of hemophilia B. Although the fetus was determined to be male, the parents elected not to have further testing to determine if he had hemophilia or not. The difficulties in the in utero diagnosis of hemophilia B are presented and discussed. In addition, the moral reasoning and decision-making process that this couple went through regarding the decision not to have further fetal testing and to continue the pregnancy is presented and analyzed. These moral decisions appear to be based on family and personal ties, and bonding to the fetus after perception of fetal movement. They combine considerations of the duties and rights involved in such situations, and attend to the anticipated consequences as well.
一对夫妇前来咨询，因妻子是乙型血友病的携带者，他们接受了产前咨询并进行了羊水穿刺以确定胎儿性别。尽管胎儿被确定为男性，但父母选择不再进行进一步检测以确定他是否患有血友病。文中介绍并讨论了乙型血友病宫内诊断的困难。此外，还介绍并分析了这对夫妇在决定不再进行进一步胎儿检测并继续妊娠时所经历的道德推理和决策过程。这些道德决策似乎基于家庭和个人关系，以及在感觉到胎儿胎动后与胎儿建立的情感联系。它们综合考虑了此类情况中涉及的责任和权利，并关注预期的后果。
