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多发性硬化症患者的长期护理:神经科医生的观点。

Long-term care of patients with multiple sclerosis: a neurologist's perspective.

作者信息

Rose A S

出版信息

Neurology. 1980 Jul;30(7 Pt 2):59-60. doi: 10.1212/wnl.30.7_part_2.59.

DOI:10.1212/wnl.30.7_part_2.59
PMID:6771679
Abstract

Multiple sclerosis is a chronic disease with varying degrees of disability and progression. Because there is no known specific therapy, for best care, patients are individualized, with attempts to deal with each patient and each complication separately, thoughtfully, and with psychological support when required. Efforts are directed toward helping the patient adjust to the realities of the disease and to specific disabilities. Ways and means of gaining patient confidence are discussed--and emphasis is placed on the known pathologic processes involved and how information, personalized professional attention, and support might function to aid the body's defense mechanisms for containment of the disease process. Several clinical cases were summarized (at the symposium) to illustrate the favorable and unfavorable effects of personality and emotional characteristics over a long term of care.

摘要

多发性硬化症是一种伴有不同程度残疾和病情进展的慢性疾病。由于尚无已知的特效疗法,为了提供最佳护理,患者需个体化治疗,针对每位患者及其每种并发症分别进行审慎处理,并在必要时给予心理支持。努力方向是帮助患者适应疾病的实际情况以及特定的残疾状况。探讨了赢得患者信任的方式方法,并强调了所涉及的已知病理过程,以及信息、个性化的专业关注和支持如何发挥作用,以协助身体的防御机制控制疾病进程。(在研讨会上)总结了几例临床病例,以说明长期护理中人格和情绪特征所产生的有利和不利影响。

相似文献

1
Long-term care of patients with multiple sclerosis: a neurologist's perspective.多发性硬化症患者的长期护理:神经科医生的观点。
Neurology. 1980 Jul;30(7 Pt 2):59-60. doi: 10.1212/wnl.30.7_part_2.59.
2
The neurologist's role in disabling multiple sclerosis: A qualitative study of patient and care provider perspectives.神经科医生在多发性硬化症致残中的作用:一项对患者和护理提供者观点的定性研究。
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Responsibilities of Health Care Professionals in Counseling and Educating Patients With Incurable Neurological Diseases Regarding "Stem Cell Tourism": Caveat Emptor.医疗保健专业人员在为患有无法治愈的神经疾病的患者提供咨询和教育方面的责任:谨慎购买。
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Shared decision-making in multiple sclerosis.多发性硬化症中的共同决策
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The teaching of bioethics to the health care team: the neurologist's role.
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A prospective web-based patient-centred interactive study of long-term disabilities, disabilities perception and health-related quality of life in patients with multiple sclerosis in The Netherlands: the Dutch Multiple Sclerosis Study protocol.荷兰一项基于网络的前瞻性以患者为中心的互动研究,涉及多发性硬化症患者的长期残疾、残疾认知及健康相关生活质量:荷兰多发性硬化症研究方案
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Is the internet transforming the physician-consumer relationship? Preliminary data in a neurological setting.互联网正在改变医患关系吗?神经科领域的初步数据。
Eur J Neurol. 2003 Mar;10(2):192. doi: 10.1046/j.1468-1331.2003.00502_5.x.
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Multiple sclerosis: common management issues.多发性硬化症:常见的管理问题。
Aust Fam Physician. 1992 Oct;21(10):1421-4.
9
The neurologist's dilemma: MS is a grey matter disease that standard clinical and MRI measures cannot assess adequately--no.神经科医生的困境:多发性硬化症是一种灰质疾病,标准的临床和核磁共振成像测量方法无法对其进行充分评估——并非如此。
Mult Scler. 2012 May;18(5):557-8. doi: 10.1177/1352458512443995.
10
The neurologist's dilemma: MS is a grey matter disease that standard clinical and MRI measures cannot assess adequately--yes.神经科医生的困境:多发性硬化症是一种灰质疾病,标准的临床和磁共振成像测量方法无法对其进行充分评估——没错。
Mult Scler. 2012 May;18(5):559-60. doi: 10.1177/1352458512443997.

引用本文的文献

1
When neurologist and patient disagree on reasonable risk: new challenges in prescribing for patients with multiple sclerosis.当神经科医生和患者对合理风险存在分歧时:多发性硬化症患者处方制定的新挑战。
Neuropsychiatr Dis Treat. 2011;7:197-208. doi: 10.2147/NDT.S17522. Epub 2011 Apr 19.
2
Multiple sclerosis: it epidemiological, genetic, and health care impact.多发性硬化症:其流行病学、遗传学及医疗保健影响。
J Epidemiol Community Health. 1995 Dec;49(6):563-9. doi: 10.1136/jech.49.6.563.