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胎儿酒精综合征患儿严重喂养功能障碍的管理

Management of severe feeding dysfunction in children with fetal alcohol syndrome.

作者信息

Van Dyke D C, Mackay L, Ziaylek E N

出版信息

Clin Pediatr (Phila). 1982 Jun;21(6):336-9. doi: 10.1177/000992288202100603.

DOI:10.1177/000992288202100603
PMID:6804149
Abstract

In the past three years, we have seen three children who required prolonged inpatient admissions for severe feeding dysfunction resulting in nutritional and growth problems. The pregnancies were significant for severe maternal alcohol abuse during the entire pregnancy. All of the subjects had multiple physical findings and dysmorphic features seen in children with mild to severe fetal alcohol syndrome. Feeding evaluations showed significant delays in oral motor development. Specific oral motor dysfunction was not a commonality and did not appear to be a major determinant in delays in feeding development. Continued assessment revealed that the babies had limited suck patterns and were consistently noted to tire easily. Each required feeding by either gastrostomy and/or nasogastric feeding for prolonged periods of time. They started initial feeding by mouth at about 8 to 10 months. The times for complete oral feeding were 14, 17 and 18 months.

摘要

在过去三年里,我们接诊了三名儿童,他们因严重的喂养功能障碍需要长时间住院治疗,进而导致营养和生长问题。这些患儿的母亲在整个孕期都严重酗酒。所有患儿都有多种身体体征以及轻至重度胎儿酒精综合征患儿所具有的畸形特征。喂养评估显示口腔运动发育明显延迟。特定的口腔运动功能障碍并不常见,似乎也不是喂养发育延迟的主要决定因素。持续评估发现,这些婴儿的吸吮模式有限,而且一直被注意到很容易疲倦。每个患儿都需要通过胃造口术和/或鼻饲进行长时间喂养。他们大约在8到10个月时开始尝试经口喂养。完全经口喂养的时间分别为14个月、17个月和18个月。

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